The Many Hats of a GIST Caregiver
The role of caring for someone you love with sarcoma arrives without training, without a handbook, and usually without a support system. We understand your situation and want to help.
The role of caring for someone you love with sarcoma arrives without training, without a handbook, and usually without a support system. We understand your situation and want to help.
GIST patients often face unequal care due to gaps in specialist access, biomarker testing, and education, underscoring the need to make expert, equitable treatment the standard rather than the exception.
The holidays can be a beautiful time, but they can also bring an undercurrent of exhaustion, guilt, and pressure to “be okay”.
The Life Raft Group’s Health Equity Council honors Martina’s legacy while working to close care gaps and expand patient access to resources.
The Life Raft Group Health Equity Council meets biweekly to discuss strategies for ensuring that all patients have equitable access to healthcare and resources. This is an update from the past two meetings.
The Life Raft Group's advocacy during Rare Disease Week secured vital NIH funding for GIST and rare disease research.
The New Horizons GIST Consortium has created a Global Advocate Academy Course (GAAC) targeted towards GIST patients, caretakers, oncologists, researchers, and organization representatives located worldwide.