What does an Expanded Access Program mean for GIST patients?
Pharmaceutical companies may create an Expanded Access Program (sometimes called compassionate use) when a clinical trial is no longer enrolling but the medicine still shows promise.
LRG & Collaborators Publish New Paper on Adjuvant Imatinib in KIT Exon 9 Mutations
Published on February 26, 2026, this international study represents a major collaboration between The Life Raft Group and thirty-five leading cancer centers across the U.S., Europe, and Japan to better understand treatment for gastrointestinal stromal tumors (GIST) with KIT exon 9 mutations.
The Many Hats of a GIST Caregiver
The role of caring for someone you love with sarcoma arrives without training, without a handbook, and usually without a support system. We understand your situation and want to help.
Patient & Caregiver of the Month for February – Carolyn & Mark Dewalt
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Carolyn & Mark shares their story.
World Cancer Day: From Survivor to Supporter
On World Cancer Day, it is important to remember that cancer care does not end with surgery or chemotherapy - Rashi Kapoor of Sachin Sarcoma shares her thoughts.
Remembering a Great Friend to the LRG – Chuck Korte
To so many in our community, Chuck was a beacon of hope. He was one of the very few long-term survivors from the original Gleevec (STI-571) clinical trial, which he joined in 2001. For [...]
Bridging the Gaps in GIST Care
GIST patients often face unequal care due to gaps in specialist access, biomarker testing, and education, underscoring the need to make expert, equitable treatment the standard rather than the exception.
Sarcoma – The Cancer No One Talks About
Sarcoma is a rare, often overlooked cancer that demands greater awareness, early specialist care, and stronger support so patients do not face the disease alone.
Patient of the Month for January – Felicia Arroy-Scheffler
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Felicia Arroy-Scheffler shares her story.
LRG Athletes Win for the GIST Community!
Five GIST advocates used their passion for sports in 2025 to fundraise through our LRG Athletes program raising awareness and funds for our GIST community.