A new phase I/II clinical trial will soon be opening for pediatric and young adults with GIST. This trial will be testing Sutent (sunitinib), the currently approved second-line treatment for GIST, in young patients. At the current time, the optimal dose for Sutent is not known for pediatric patients. This trial will help assess the safety and tolerability of Sutent in young patients.
An intimate group of GIST patients and supporters living in the area gathered to reconnect with and meet other GISTers and exchange each other’s experiences as well as the various technological and medical advancements and options available to them.
The Life Raft Group is hosting an online shopping event in collaboration with our dedicated volunteer photographer Kim Tallau and Touchstone Crystals Jewelry (a member of the Swarovski Group). You can shop their online store from now until December 20 with 15 percent of all sales going towards helping the LRG achieve its goal of curing GIST and to helping those living with it until then.
On November 3, 2011, the twelfth Edi film prize for the best advertising, industrial and corporate films was awarded in the Schiffbauhalle in Zurich. Our film, “Life with GIST” won a Silver Edi in the “Corporate: Internal Communication & Training” section.
The Bill Buchanan Life Raft GIST Support Group held its first meeting on Saturday, October 22 at the John Stroger Hospital of Cook County located in Chicago. This program was mentored by the LRG and made possible by the wishes of the late Bill Buchanan.
We would like to thank all New Jersey GISTers who joined us on November 12 for the NJ Chapter meeting at the Life Raft Group office. Special gratitude goes out to Dr. William Tap (second from [...]
One of the highlights of the American Society of Clinical Oncology (ASCO) conference was the session “Gastrointestinal Stromal Tumors: Multimodal Approach.” George Demetri M.D. began the discussion with a review of the history and biology of GIST. Dr. Demetri reviewed the current status of GIST and brought up some new challenges ahead.
I think it's important to give back and hopefully as a Texas Rep. for GIST I'll be able to help others. When I was first diagnosed with GIST, it was the most stressful period in [...]
The United States Social Security Administration (SSA) pays disability benefits to people who cannot work because they have a medical condition that is expected to last at least one year or result in death. Federal law requires this very strict definition of disability. While some programs give money to people with partial disability or short-term disability, Social Security does not.
One of those things is to run a marathon. At the Battle of Marathon, the legend of the runner Pheidippides was born, as his running from Marathon to Athens declaring "We are victorious" and dying of exhaustion immediately. It was hailed as the farthest a man could run before he died.
