The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
New staff, old staff, and lots of students
Over the last few months we have had our new Assistant Program Director come aboard, a long time LRG staff member get married and have a mini reunion, and Fundacion GIST Mexico reached 1,000 medical students.
World Cancer Day – How Will You Celebrate?
Today, February 4, 2014, marks a pivotal day of awareness across the planet. Cancer, a disease of many faces, has tortured and [...]
LRG Launches Global Medical Team
The Life Raft Group is pleased to formally announce the creation of its first ever Global Medical Team. This team, which consists [...]
New Treatments for GIST: Finding the Right Combinations
Prior to 2000, surgery was the only known effective treatment for advanced GIST.
Treatment of Small Stomach GISTs
Some stomach GISTs smaller than 2 cm may pose more risk than previously thought according to a new report from China.
Reasons why GISTer’s are on no treatment
One of the frequently asked questions from the GIST Community is “Why are there some GIST patients who do not take any medication to treat GIST?”
Caregiver support group in Illinois
After her husband Bill was diagnosed with GIST in November 2010, Marlene and Bill entered the frightening and confusing world of doctors, hospitals, treatments and uncertainty.
The Life Raft Group Attends 18th Annual CTOS Meeting in NYC
From October 30th to November 2nd the Life Raft Group staff members attended the annual Connective Tissue Oncology Society (CTOS) Meeting in NYC.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
