The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
IRBs and the LRG Patient Registry
Institutional Review Boards (IRBs) are the core of the well-established U.S. system for the protection of human research participants.
Kie Go Turns Knowledge Into Action
In early 2012, I was having gastric discomfort, so I took over-the-counter medication and it seemed to feel better.
WE are the CURE – GIST is the Paradigm
Over the past seven years, thanks to the dedication and support of the GIST community, the LRG Research Team has challenged [...]
Dr. Brian Rubin Says LRG Research Team will Cure GIST
Dr. Brian Rubin of the LRG Research Clinic in Cleveland talks about the research we are able to do because of our amazing research team. He goes on to state that it is only a matter of time before we cure GIST. Our only obstacle is funding.
Pregnancy Outcomes in Patients with CML Treated with Imatinib
Is pregnancy for me?, is a common question among GIST patients. At present there isn't a lot of data on pregnancy [...]
FDA asks ARIAD to suspend marketing and sales of Iclusig (ponatinib)
The U.S. Food and Drug Administration (FDA) has asked ARIAD Pharmaceuticals, the manufacturer of Iclusig (ponatinib) to suspend marketing and sales of [...]
Stivarga Approved for Canadian GIST Patients
Health Canada has expanded approval for the use of Stivarga to fight Gastrointestinal Stromal Tumours (GIST), according to an article from CNW. Bayer [...]
AACR Releases 2013 Cancer Progress Report
The AACR has released it's 2013 Cancer Progress report. The report is a comprehensive educational tool that illustrates the return on investments in [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
