The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Pediatric GISTer ties the knot!
Jason DeLorenzo, LRG member and pediatric GISTer, got married on November 17, 2012 to Jill Medhus.
LRG closes out 2012 in the spotlight: advocacy, support & research highlighted
The Life Raft Group is dedicated to the welfare and survival of GIST patients worldwide and we carry out our mission through research, patient support & education and advocacy. The LRG was highlighted in all three areas at the end of 2012 and we wanted to share the important work we’re doing with all of you.
Dave Safford shares his list of happiest moments since GIST and those still to come
Recently, LRG Board Member Dave Safford decided to sit down and think about all of the good fortune that has come into his life since being diagnosed with cancer. We liked his list so much we decided to share it so that everyone in the GIST community can see a story of positivity and hope.
Swiss GIST Group awards 2012 GIST Prize
The GIST Group of Switzerland awarded its science prize for the third time on November 22, 2012. It has been awarded ex aequo to Dr. Daniel Perez, Memorial Sloan-Kettering Cancer Center (MSKCC), New York, USA, and Dr. Michael Montemurro, CHUV Lausanne/University Hospital Zurich.
LRG annual holiday fundraiser going strong!
If you have been mailed a fundraising packet and still have donor cards to send out, it is not too late. Consider passing one on to a neighbor co-worker, friend or family member.
LRG Sets GDOL Miami Date for March
The second annual GIST Day of Learning will be held on March 23, 2013. This year we are privileged once again that Dr. Jonathan Trent of Sylvester Cancer Center in Miami has agreed to host our gathering and we are honored to hear what he has to say.
LRG welcomes Deputy Director and two new members to Board
The LRG is pleased to welcome Roger C. Campbell as our new Deputy Director. Roger, an attorney, brings to the LRG over 25 years of experience in the global financial services sector.
LRG launches new & improved website, convenient mobile app & online store!
After two years of planning, toiling, and more planning, the LRG unveiled its redesigned website on January 1 at our same web address: liferaftgroup.org. Finding the balance between providing life-saving information and explaining GIST in a concise, understandable way, has always been a struggle for the Life Raft Group.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
