The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
EU Cancer Patients Concerns Heard: Cancer Patient Mobility Moves Closer to a Reality
EU Cancer Patients Concerns Heard: Cancer Patient Mobility Moves Closer to a Reality. The following article was taken from a European Cancer Patient Coalition press [...]
FDA official wants to prosecute pharma execs
This article is excerpted from a Bloomberg News story. FDA to pharma: Review your marketing to make sure it’s not breaking the rules, [...]
Congratulations Dr. Su Kim!
Dr. Su Young Kim, who runs the NIH’s Wildtype & Pediatric GIST clinic, has been a little busy lately...welcoming a baby girl in [...]
No guilt for charitable giving through iGive and Goodshop
This holiday season, ditch the guilt of spending and make a purchase that combines the good feelings of giving and charitable giving [...]
Skydive for GIST is a success!
“The skydive was awesome!” says Stacey McAully. On October 24, Stacey, her sister, Sammy, and their best friend, Gemma Day skydived to [...]
Safford brings together champagne, strawberries and a concert pianist for unforgettable Valentine’s fundraiser
Life Rafter and GIST survivor David Safford is hosting a benefit concert on Valentine’s Day to raise funds and awareness for the [...]
Impressive 7th meeting of the Swiss GIST group
Written by Helga Schnorf On April 23, 2010, ninety GIST patients, relatives, GIST experts, and representatives of the pharmaceutical industry attended the Seventh [...]
The giving has begun: LRG’s annual holiday campaign is off to a great start
The Life Raft Group’s Annual Holiday Giving Campaign has been kicked off to a great start! This comes as no surprise to [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
