The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Global Advocacy News – SIMPOSIO ONCOLATINO
PIGA FERNÁNDEZ, LRG GLOBAL CONSULTANT, GLOBAL GIST DIR., EXEC. DIRECTOR FUNDACIÓN GIST CHILE I was invited to participate in [...]
Collaborative Effort Produces Position Paper on Need for Advanced Biomarker Testing
The Life Raft Group was recently part of team of authors on a collaborative position paper entitled 'Undetected KIT and PDGFRA mutations: an under-recognised cause of gastrointestinal stromal tumours (GISTs) incorrectly classified as wild-type published' in Pathology: The Journal of the Royal College of Pathologists of Australia.
Let the Buyer Beware: Challenges with Online Pharmacies
Recent articles have shed light on an issue of concern about counterfeits for patients who take imatinib myselate as part of their treatment for GIST.
Be a Part of the GIST Mosaic
GISTers, please consider participating in this awesome mosaic honoring all GIST thrivers that we're partnering with CogentBiosciences to create. Let's tell the world about GIST!
Life Fest New Orleans 2022: Sights & Sounds
Life Fest has a roster of great GIST education programming but there's also time at the day's end to indulge in some local activities. Here's a list of some of the top attractions in NOLA.
Centro de Oncología de Precisión U. Mayor reunió a pacientes con cánceres gastrointestinales
El encuentro, organizado para conmemorar el Día Internacional de la Concientización del GIST en conjunto con la Fundación GIST Chile, destacó la necesidad y la importancia del diagnóstico precoz y las terapias personalizadas para mejorar la calidad de vida de los pacientes.
Did You Know? The LRG Hosts Monthly Virtual GISTer & Caregiver Support Groups
The Life Raft Group hosts two monthly support groups - one specifically for GISTers and the other for Caregivers which meet twice a month- via Zoom.
Ten Reasons to Attend Life Fest New Orleans 2022!
It’s time to get ready for our Life Fest celebration in New Orleans! Here are the top ten reasons to attend.
GLOBAL PARTNERS & AFFILIATIONS
