The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
LRG Staff Commentary on ASCO22 Presentations/Posters
The Life Raft Group Data Management & Research and Communications Team attended remotely to gain knowledge of current research in GIST and to track breaking news and social media networking. In this post, we present commentary on several presentations and posters.
Updates from ASCO
In this webinar, Dr. Andrew Wagner and Dr. Herbert Loong summarize abstracts and presentations presented during the ASCO22 conference relevant to the GIST patient community.
Life Fest 2022 Program Highlights
Join the LRG team, renowned GIST experts, and fellow GISTers & family at Life Fest, July 29th-31st, in New Orleans, LA, and learn more about GIST in either of these two sessions: General or SDH.
Our 20/20 Challenge Continues!
Join this Matching Gift Challenge for June 17th! A generous LRG donor has challenged The Life Raft Group with raising $3K by Friday, June 17th.
The Life Raft Group Patient Registry in Review 2021
The LRG plays an instrumental role in bridging the gap between patients with valuable clinical GISTories and researchers who are eager to understand the natural causes of GIST. To illustrate the progress of our data collection in the LRG GIST Patient Registry, we have released the GIST Patient Registry In Review for 2021.
Did You Know? Tissue Testing FREE for GIST Patients!
The Life Raft Group is currently conducting a tissue testing initiative for GIST patients to receive FREE Next-Generation Sequencing (NGS) Testing!
Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST
TE INVITA A LA REUNIÓN DE PACIENTES PARA CONVERSAR SOBRE:"Efectos de la Nutrición y la Microbiota Intestinal en pacientes con GIST". La Sra. Carbajal-López describió los beneficios de una nutrición adecuada, la relación entre la nutrición y los procedimientos quirúrgicos, el vínculo entre el microbioma y el cáncer, y el ejercicio. 07 junio.
Join The Life Raft Group 20/20 Challenge!
As part of our 2022 “It’s Time to Tell the Stories” theme and as the LRG celebrates 20 years as a non-profit, we are committed to raising $20,000 by Life Fest New Orleans (July 29-31st) with this 20-20 Challenge.
GLOBAL PARTNERS & AFFILIATIONS
