The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
LOXO-101 Holds Promise as Potential Treatment Targeting Solid Tumors
A recent announcement from the University of Texas MD Anderson Cancer Center described a study that shows promise for a potential [...]
Spring Issue of GIST Cancer Journal has Arrived
The Life Raft Group is pleased to announce the release of the ninth issue of The GIST Cancer Journal, the official [...]
GIST: Actualizacion en el tratamiento
"GIST: Actualizacion en el tratamiento", presentación del Matias Chacon, May 12, 2016.
GIST Keep Swimming: Words to Live By
Life with cancer is like tossing all your dreams, goals and achievements into a bag, shaking it up and dumping it onto the floor to be stomped upon. Some say I was lucky to get my diagnosis at age 16, before I had a career or a family to support.
Leading GIST Experts Weigh in at ESMO
David Josephy On behalf of The Life Raft Group USA and Life Raft Group Canada, I attended the Sarcoma [...]
Brief from ASCO’s Clinical Cancer Advances 2016
On February 4, 2016, Life Raft Group member Noha Hussein attended the American Society of Clinical Oncology’s (ASCO) Capitol Hill Briefing [...]
Study Finds Adjuvant Systemic Therapy with Imatinib Increasing Over Time
A recent study published in the American Journal of Clinical Oncology found that the use of adjuvant systemic therapy with imatinib [...]
Proton Pump Inhibitors Linked to Kidney Disease
A recent study published in the JAMA Internal Medicine reports a link between the use of proton pump inhibitors (PPIs) and [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
