The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Cancer Patients Rarely Request Unnecessary Tests
In spite of some medical professionals' claims to the contrary, cancer patients rarely request unnecessary tests or treatments according to a [...]
LRG State Leaders Connect
On Wednesday, February 11, the Life Raft Group’s state leaders had their first opportunity to gather virtually and discuss best strategies [...]
LRG Accepting Applications For Third Virtual GIST Tumor Board
The Life Raft Group is opening up the application process for our third Virtual GIST Tumor Board, date to be determined. This [...]
NCI Team Identifies A key Molecular Defect In SDH Patients
Jim Hughes A National Cancer Institute team led by Paul Meltzer recently published a paper in Science and Translational Medicine entitled, “Recurrent [...]
Dr. Monica Anderson: Inspirational Survivor
updated 1/20/21 Dr. mOe is an author, survivor, and dynamic mOe-tivational speaker. Diagnosed with GIST in 2012, Dr. mOe believes [...]
Understanding Generic Drugs
With the onset of the patent expiration on Gleevec of the patent expiration on Gleevec for CML expiring in July and for GIST [...]
Developing GISTKids.org
During the Life Raft Group Life Fest 2014, a panel of young GIST patients and family members gathered around a table [...]
LRG Research Team Member Anette Duensing Receives 2014 GIST Award
The GIST Group Switzerland recently awarded its Science Prize to Dr. Anette Duensing, Assistant Professor of Pathology at the University of [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
