GIST Wishes!
Here are some #GISTWishes from our LRG Community shared in our December 2021 newsletter.
Times series underscores LRG research team’s approach
The first in a series of New York Times articles by science writer Gina Kolata on new approaches to cancer treatment underscored the type of cutting-edge approaches taken by the Life Raft Group’s own team of researchers. [...]
Agreement in Guatemala to benefit GIST patients
An agreement to secure the entry of Gleevec for Guatemalan GIST and chronic myeloid leukemia patients was reached with the Central American country’s government July 10, following advocacy efforts by Novartis Pharmaceuticals, Alianza GIST and [...]
Alianza GIST joins forces with Brazilian partner
Alianza GIST and Oncoguia have formalized a new partnership to work together to benefit GIST patients in Brazil. The first goal of this partnership is to identify GIST patients in the different regions of [...]
New gene panel takes mutation testing to a new level
A new gene panel takes mutation testing to a new level. The panel tests for mutations in 23 genes at once will help to properly classify wild-type GIST patients. Working with next generation sequencing [...]
A Dutch youth’s global search for other patients with Carney’s Triad
Since he turned 14, Jasper Smit of the Netherlands has been searching for patients like him. This is very difficult because Carney’s Triad is an extremely rare syndrome. Worldwide there are about 30 known patients with a ‘complete’ Carney’s Triad (GISTs, pulmonary chondromas, paragangliomas). Incomplete Carney’s Triad affects less than 100 patients in the world. This means that they have two of the three types of tumor (mostly GISTs and pulmonary chondromas). In his own words, here is Jasper’s story.
Viva Life Fest! Join us in Las Vegas
The Life Raft Group will be marking a milestone at Life Fest 2012: Celebrating 10 Years of Dedication on November 9 to 11 at the Red Rock Casino in Las Vegas. We are at a [...]
New report finds most hospital errors go unreported
In a January 6, 2012 New York Times article, “Report Finds Most Errors at Hospitals Go Unreported” by Robert Pear, the author explained that federal investigators have shown in a new report that hospital employees recognize and report only one out of seven errors...
6th NIH GIST clinic once again succesful
“I learned a lot and feel so much better having the NIH team as an additional resource, “said LRG member, Anne Pacifico.
Clinical Trials update for February 2011
Bayer initiates a randomized Phase III trial of Regorafenib in GIST: On January 10, 2011 Bayer Healthcare in Berlin, Germany announced the initiation of a randomized phase III trial of Regorafenib (BAY 73-4506) for Gastrointestinal Stromal Tumor patients.