The Life Raft Group held a GIST Day of Learning (GDOL) in Portland, at Oregon Health & Science University (OHSU), on June 22nd, 2019. GDOLs are free, one-day programs that provide both education and support to the GIST community. Top GIST specialists present the latest on research and treatment options as well as provide a comprehensive review of the science behind GIST. GDOLs provide an opportunity not only to meet and interact with local expert practitioners in an intimate setting but also for patients to connect with one another in a supportive environment.
What happened at GDOL Portland?
Over 50 patients, caregivers, OHSU practitioners, and friends attended this weekend event. Several new members joined our GIST community while in Portland. Our day began with a one-mile GIST DO IT Walk across the Tilikum Crossing Bridge over the Willamette River followed by a meet and greet breakfast during the registration and check-in. Diana Nieves, LRG Senior Director of Outreach & Engagement, welcomed everyone and presented Dr. Michael Heinrich of Oregon Health & Science University (OHSU) with the Circle of Excellence Award for being a Co-Founder of the GIST Global Expert Surveillance Team.
Dr. Heinrich graciously accepted this award and opened our GDOL by introducing Dr. Suzanne George of Dana-Farber Cancer Institute who gave a presentation on Standard GIST Treatments. Dr. Arun Singh of Ronald Reagan UCLA Medical Center followed with his presentation on New GIST Treatments/New Agents for GIST. OHSU’s Registered Nurse, Tracy Havnaer, spoke about How to Find and Participate in a GIST Clinical Trail. Dr. Heinrich then shared an update on SDH-deficient GIST which was followed by Clinical Pharmacist Joseph Bubalo’s presentation on THC, CBD and their impact on GIST.
Thank you to Bayer, Deciphera, Genentech, Novartis, and Pfizer for sponsoring our 2019 Portland GDOL.
Why attend a GDOL?