Management of Adults with SDH-Deficient GISTs
Dr. Andrew Blakely, Program Director, Surgical Oncology Research Fellowship, National Cancer Institute, National Institutes of Health, shares how his team works with adult SDH-deficient GIST patients.
Patient of the Month for February: Richard Schoenbohm
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Richard Schoenbohm shares his story.
Patient of the Month for January: Juan Castelan
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Juan Castelan shares his story.
Patient of the Month for December: Sara Penne
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Sara Penne shares her story.
Patient of the Month for November: Jodi Lang
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Jodi Lang shares her story.
Finding a Ride to Your Doctor’s Appointments
Over 3.6 million people miss their medical appointments each year, preventing them from getting the care that they need or getting access to the medicine that could help them. People report that distance to the doctor’s office, cost of the transportation, and access to a driver or public transportation as the main reasons that they are having a challenge with transport.
Patient of the Month for October: Joel Sherr
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Joel Sherr shares his story.
17th NIH Pediatric and Wildtype GIST Clinic Held
The 17th Pediatric and Wildtype GIST Clinic was held at the National Institutes of Health in Bethesda, Maryland on September 25-27, 2019. The Clinic was a collaboration amongst researchers, specialists, patient advocates, patients, and family members, with the goal of furthering the knowledge of SDH-deficient Gastrointestinal Stromal (GIST) tumors in order to develop more effective therapies.
Patient of the Month for September: Eric Lindberg
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Eric Lindberg shares his story.
Patient of the Month for August: Guy Jones
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Guy Jones shares his story.