Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021
Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021.
Executive Director Scherzer Speaks at Advocacy Seminar on Chronic Disease Day
On Wednesday, July 14th, the LRG's Executive Director Norman J. Scherzer joined a renowned group of speakers for the Chronic Disease Day Advocacy Training Session which was presented live on Facebook by Good Days [...]
It’s Time: The Life Raft Group Biomarker Testing Campaign – It’s Time to Save Lives!
Biomarker testing is an opportunity to improve and optimize treatment. In this post, GISTer Bill Borwegen shares his story and we share how you can help save lives.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Identify Subsets & Clinical Trials
Identifying rare subsets of GIST and starting new clinical trials is critical. Read here about one researcher's clinical trial progress.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Standard of Care
If you know your mutation, you have a better chance of getting the most effective treatment more quickly, and increasing your survival time. Making biomarker testing a standard of care will ensure that patients & medical professionals are fully informed so that treatment will be more effective.
GIST Awareness Day 2021
Despite all the work done by our amazing members and friends to date there is still a huge lack of education and awareness that exists within the medical community and general public about GIST. [...]
It’s Time: The Life Raft Group Biomarker Testing Campaign – Advocate for this Lifesaving Tool
Uncovering the driving force behind each individual’s tumors is not just important, it is critical. In this post, we feature sarcoma experts discussing biomarker testing.
New Horizons GIST Presents Webinar on Mutational Testing for Global Community
This New Horizons GIST webinar is for GIST patients around the world. Hosted by SPAEN, this presentation focuses on mutational testing as a guide for the right therapy.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Educating & Informing Payers
It's Time! Biomarker testing leads to an accurate diagnosis, avoiding the expense of unnecessary, expensive treatments. Biomarker testing leads to an accurate diagnosis, avoiding the expense of unnecessary, expensive treatments.
Genetic Testing Recommended for SDHx Mutation Carriers
This study strongly recommends genetic testing and regular biochemical testing and clinical exams for SDHx mutation carriers.