Dae Shik Kang Walks to Spread Hope
South Korean GISTer Dae Shik Kang, 62 years old, walked 430km (267 miles) to share hope and courage. Today Dae is still spreading hope & staying healthy.
New Treatment Updates for Advanced GIST
This video is about the new treatment updates for advanced GIST. It is presented by William D. Tap, MD.
It’s Time: The Life Raft Group Biomarker Testing Campaign – The Physician Community Speaks
It's #TimeToGetTested. Understanding the role of mutations and biomarker testing is one of most important things patients must learn. It's time to bring together our physician community to raise their voices! In this post, we present out Biomarker Declaration for GIST pertaining to testing.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Empower Patients
As part of our 'It's Time' campaign, we are sharing Blueprint Medicines's tools for talking to your doctor about biomarker/mutational testing.
Management of Metastatic GIST – What to Expect When a Tumor has Spread
This video contains information about the management of metastatic GIST presented by Dr. Aimee Crago.
Conversations with the LRG: Long-Term Survivors
On May 4th the LRG held a lively discussion with three long-term survivors, Erin McBean, John Abrams, and Dr. mOe Anderson. Diagnosed at different stages of life, with different mutations, these GISTers shared how they have thrived with GIST over ten years and counting.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Outcomes
If you know your mutation, you have a better chance of getting the most effective treatment more quickly, and increasing your survival time. Knowledge makes an empowered patient and an empowered patient asks and researches their disease.
Annual Report 2020
Our theme for 2020 was Hope. 2020 presented a challenge to us all, but most especially to our patients and caregivers who are seeking to survive this rare cancer. In 2020, The Life Raft Group needed to provide a lifeline to our community, and to offer them hope in the form of increased support as we navigate the challenges of living in a COVID-19 world. #GISTHope
NIH Pediatric & Wildtype GIST Clinic 2021 Applications Are Open!
The LRG will be collaborating with the NIH again in 2021 to hold the Virtual GIST Tumor Board in place of the NIH's Pediatric & Wildtype GIST Clinic normally held in the DC area. Applications to have cases reviewed are now open.
It’s Time: Precision Oncology
It's time to fully unleash the power of biomarker testing to support precision oncology - all GIST patients should have biomarker (mutational) testing for the best possible personalized treatment plan.