The Life Raft Group Joins OVAC
The Life Raft Group is pleased to announce its recent membership in One Voice Against Cancer (OVAC). Established in 2000, OVAC has grown to become the Capitol’s leading cancer coalition by unifying US cancer [...]
Advocacy in Chile Moves Forward: an Update
New steps have been taken in Chile that will benefit patients who need high cost treatments. Piga Fernández, LRG Global Consultant in Chile, together with representatives of 26 patient organizations has been working on [...]
Advocating for Change: Cancer Breakthroughs Needed
A recent article in Forbes reports that although we are witnessing a time of historic breakthroughs in cancer treatments, we are lagging behind on policy breakthroughs in the development, funding and delivery of excellent cancer [...]
#GIST31Wishes Campaign
Our GIST Wishes We highlighted one GIST wish every day in the month of December, turning our hopes and dreams into visions for the future. Members and staff shared their heartfelt wishes such as: [...]
Life Raft Group Joins The Global Community In Honoring World Cancer Day 2015
The Life Raft Group joins the global community in honoring World Cancer Day 2015.We join with everyone in the cancer community: researchers, physicians, advocates, patient organizations, government agencies, and most importantly, patient and caregivers to [...]
Piga Fernández: Advocate For Change
Advocacy for GIST patients is a vital part of the work the Life Raft Group undertakes, but there are advocacy “superheroes” out there, going above and beyond to ensure that all GIST patients receive [...]
Life Raft Group Attends Partnering For Cures Meeting
The sixth annual Partnering for Cures meeting sponsored by FasterCures was held November 16-18 in New York City. Over 1,000 attendees from biopharma, governmental agencies, academia, philanthropy and patient advocacy organizations came together to [...]
UK Pulls Stivarga From Cancer Drug Fund Endangering GIST Patients
The National Health Service (NHS) in the United Kingdom has announced plans to halt funding through the Cancer Drug Fund for regorafenib (Stivarga), thereby preventing GIST patients from having access to this life-saving medication.We at [...]
Fundacion GIST Advocates for Rare Disease Day In Mexico
LRG's Rodrigo Salas, member of the Board of Directors, was interviewed on Televisa Monterrey as part of Fundacion GIST Mexico's citizen initiative to have February 28 declared "Rare Disease Day" in their home state [...]
One Hundred and Thirty Thousand Wishes: Life Fest 2014
One hundred and thirty thousand wishes, tributes, memories, goals, and dreams greeted me on arrival to the Life Raft Group’s Life Fest 2014. They were in the shape of origami boats. From a distance, [...]