The National Health Service (NHS) in the United Kingdom has announced plans to halt funding through the Cancer Drug Fund for regorafenib (Stivarga), thereby preventing GIST patients from having access to this life-saving medication.We at [...]
LRG's Rodrigo Salas, member of the Board of Directors, was interviewed on Televisa Monterrey as part of Fundacion GIST Mexico's citizen initiative to have February 28 declared "Rare Disease Day" in their home state [...]
One hundred and thirty thousand wishes, tributes, memories, goals, and dreams greeted me on arrival to the Life Raft Group’s Life Fest 2014. They were in the shape of origami boats. From a distance, [...]
An article in the Fall issue of Wayne Magazine, a North Jersey Media publication, features The Life Raft Group, bringing awareness to the community about our mission to cure GIST, and to support those living [...]
Patient adPatient advocates have gained a new level of confidence thanks to the efforts of 21st Century Cures.
The Life Raft Group, in partnership with the National Institutes of Health, is pleased to announce that applications are currently being accepted for the second meeting of the NIH-LRG Virtual GIST Tumor Board.
Patient advocacy is a vital component in assuring that roadblocks to optimal treatment do not prevent cancer patients from obtaining the help they deserve. Recently, a group from Parent Project Muscular Dystrophy presented the FDA [...]
Marshall Summar, MD to testify on behalf of NORD at 21st Century Cures Hearing in Washington, D. C. on Friday, July 11 at 9 AM ET.
Alianza GIST members from Argentina, Bolivia, Brazil, Colombia, Chile, Cuba, Venezuela, Guatemala, Mexico, and Spain joined representatives from the Life Raft Group in Zurich, Switzerland from May 14 to 17. The major focus of the meeting was to develop a new methodology in order to move towards Alianza GIST autonomy.
With the beautiful mountains of Switzerland and Lake Zurich in the background, 44 GIST Patient representatives from 28 countries and 32 patient groups/organizations convened in Zurich for the New Horizons GIST meeting from May 14-17, 2014.
