NIH Clinic provides support and a healthy dose of fun

The 12th Pediatric and Wildtype GIST Clinic was held May 21 to 23, 2014 at the National Institutes of Health in Bethesda, Maryland. Coordinated by Dr. Sosipatros Boikos, and based out of the NIH Pediatric Oncology Department under the direction of Dr. Lee Helman, the Clinic is collaboration between clinicians and researchers to collect data, investigate and develop treatment for GIST patients who do not have either c-KIT or PDGFRA mutation.

By |2019-09-20T11:29:57-04:00July 2nd, 2014|Advocacy, GIST Education, News, Patient Support, Pediatric GIST|

Cancer Treatment – The importance of patient enrollment in clinical trials

The future of cancer treatment relies on patient enrollment in clinical trials. In a recent Chicago Tribune article, a patient story is highlighted to illustrate the important role clinical trials play in cancer treatment, not only in [...]

By |2019-09-20T15:12:24-04:00June 25th, 2014|Advocacy, Clinical Trials, News, Patient Support|

New Horizons Zurich Meeting Declaration

The 2014 Zurich Declaration Principles for the transition to “Generic Drugs” for GIST (Gastrointestinal Stromal Tumors) Background and Purpose: GIST (Gastrointestinal Stromal Tumor) is a rare sarcoma, with an annual incidence of about 15 persons [...]

By |2019-09-24T12:54:57-04:00June 24th, 2014|Advocacy, Global, Patient Support|

White Out Cancer day announced by the Cancer Research Institute

Today is White Out Cancer Day. In order to honor Cancer Immunotherapy Month, The Cancer Research Institute is encouraging everyone to wear white today. Immunotherapy is a promising field in cancer research and treatment that [...]

By |2019-09-20T15:28:54-04:00June 6th, 2014|Advocacy, News|

Diana Smith Helps to Raise Awareness for GIST by Sharing Her Journey

Life Raft Group member, Diana Smith was recently featured in an article in Clarksville Tennessee’s Leaf Chronicle about GIST. The article quotes Assistant Program Director, Mildred Menos and provides helpful information about GIST sure to [...]

By |2019-09-20T15:32:27-04:00June 4th, 2014|Advocacy, Member Stories, News, Patient Support|

GDOL Miami Attracts Large Attendance This Year

Over 80 GISTers and their loved ones gathered from all over to attend the 3rd annual GIST Day of Learning (GDOL) in Miami, held on February 9, to hear from the team of experts at University of Miami Sylvester Cancer Center.

By |2018-07-23T10:43:59-04:00April 2nd, 2014|Advocacy, GIST Education, News, Patient Support|

The Life Raft Group Attends 18th Annual CTOS Meeting in NYC

From October 30th to November 2nd the Life Raft Group staff members attended the annual Connective Tissue Oncology Society (CTOS) Meeting in NYC.

By |2019-09-20T11:36:08-04:00December 6th, 2013|Advocacy, Clinical Trials, Drug Treatment, News, Research|
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