GIST Awareness Day 2020 – Mexico
Fundación GIST México celebrated GIST Awareness Day with these actitivities: Spot on local radio. "GISTJuntos" This spot which was broadcast 4 times a day from July 8th to [...]
GIST Awareness Day 2020 – UK
GIST Cancer UK celebrated GIST Awareness Day by sharing stories of patient and clinicians. GIST Awareness Day was created by the Life Raft Group in 2014 to bring awareness and public attention to gastrointestinal stromal tumors and raise funds for #GISTresearch.
GIST Awareness Day 2020 – Chile
GIST Chile celebrated GIST Awareness Day 2020 with the themes #GISTHope and #GISTJuntos (GIST Together). You can find GIST Chile on Facebook - https://www.facebook.com/gistchile, Twitter - @GistChile, Insta - gist_chile. GIST Awareness Day was [...]
GIST Awareness Day 2020 – India
Friends of Max (FOM), led by Viji Venkatesh, enthusiastically celebrated GIST Awareness Day 2020 with a plethora of posts and patient stories as well as patient meetings.
Blueprint & Deciphera Celebrate GIST Awareness Day 2020 – Galleries
Blueprint Medicines and Deciphera Pharmaceuticals celebrated GIST Awareness Day (GAD), July 13th, 2020, with Virtual Walks across the U.S. This year's GIST Awareness Day theme was #GISTHope.
RARE Partnership in Advocacy, Funding, and Research for Gastrointestinal Stromal Tumor
Partnerships and collaborations are critical to the progress of research in rare diseases. GIST specialist & Pediatric & SDH-Deficient GIST Consortium member, Dr. Jason Sicklick, and LRG member, Debra Melikian, are working together find a cure for succinate dehydrogenase-deficient gastrointestinal stromal tumors (SDH-deficient GIST), a hereditary rare cancer syndrome which claimed the lives of Debra’s husband and her son Merak.
GIST Awareness Day 2020 – Hungary
András Szekfü, of Budapest, Hungary, shares his GIST journey in this video for GIST Awareness Day, a day set aside to bring awareness of this disease.
Life Raft Group Collaborates on White Paper Published by Cancer Leaders
The Life Raft Group has been an integral part of a pan-cancer Working Group designed to determine consistent terminology around biomarker or mutational testing. The goal is to communicate to patients and the larger community in plain, patient friendly and consistent language what these terms mean, and how they impact on precision medicine.
OVAC 2020 Virtual Lobby Day
May 19, 2020 is OVAC Lobby Day highlights its work delivering a unified message to Congress and the White House on the need for increased cancer-related appropriations. Held virtually this year due to the COVID-19 pandemic, these requests affect millions of Americans facing cancer each day.
NCCN Guidelines for GIST for Patients
The LRG has been granted permission from the NCCN to share the most recent NCCN Guidelines for Patients® with soft tissue sarcoma, most specifically the section on GIST, which the LRG has endorsed.