In December, the Life Raft Group launched its “We Are the Cure” campaign to fund GIST research. I sat down with Norman to find out more about The LRG GIST research team and the campaign’s progress to date.
We had some big shoes to fill this year when we started planning our 10th Annual Night to Fight Cancer.
In early June, Scott Russell, husband of GISTer Carol, participated in the Fourth Annual Allegheny 100 Backpacking Challenge held by the scenic Pennsylvania Allegheny National Forest Chapter of the North Country Trail.
The numbers of marathon walkers, runners and spectators who gathered in support of Dana Pearson’s GIST fundraiser in Virginia was both heartwarming and astonishing.
Breaking Research Barriers! The Life Raft Group Research Team is unique. As we know, the purpose of research is to inform, educate and allow us to live better lives.
If you have been mailed a fundraising packet and still have donor cards to send out, it is not too late. Consider passing one on to a neighbor co-worker, friend or family member.
After two years of planning, toiling, and more planning, the LRG unveiled its redesigned website on January 1 at our same web address: liferaftgroup.org. Finding the balance between providing life-saving information and explaining GIST in a concise, understandable way, has always been a struggle for the Life Raft Group.
Twelve year GIST survivor and former harness driver, Bobby Kinsey, had two goals when he started planning “Harness a Cure” – to raise awareness about GIST and raise money to cure this disease. With over one hundred participants in the walk and donations continuing to arrive, Dover Down’s first Harness a Cure event to benefit the Life Raft Group’s research was a huge success thanks to Bobby who tells his fellow raftmates in the email community, “Keep Rowing.”
The Life Raft Group wishes to thank all of our members who participated in this year’s Holiday Campaign. Though it is still underway (look for final results in the next newsletter), this important campaign has raised over $47,000 to support our patient education & support, advocacy, and research to find a cure GIST.
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