Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021
Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021.
Executive Director Scherzer Speaks at Advocacy Seminar on Chronic Disease Day
On Wednesday, July 14th, the LRG's Executive Director Norman J. Scherzer joined a renowned group of speakers for the Chronic Disease Day Advocacy Training Session which was presented live on Facebook by Good Days [...]
Patient of the Month for July: Robert Cabion
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Robert Cabion shares his story.
It’s Time: The Life Raft Group Biomarker Testing Campaign – It’s Time to Save Lives!
Biomarker testing is an opportunity to improve and optimize treatment. In this post, GISTer Bill Borwegen shares his story and we share how you can help save lives.
The Eyes Don’t See What the Mind Doesn’t Know – GIST Education in México
Rodrigo Salas & Berenice Carbajal-López of Fundación GIST México illustrate how this organization is working to spread GIST awareness and education.
Spotlight on LRG Global Representatives – Nandini Dabbir, India
The newest GISTer to join the ranks of LRG Global Representatives is Nandini Dabbir of Hyderabad, India. She is a the Friends of Max City Chapter Leader & GIST Advocate working with the LRG to support GIST patients on their journey.
Rare Diagnosis Fosters a Passion for Biomarker Testing & Self-Advocacy
GISTer Bill Borwegan shares his inspiring GIST journey illustrating the importance of biomarker/ mutational testing and self-advocacy as a rare disease patient.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Identify Subsets & Clinical Trials
Identifying rare subsets of GIST and starting new clinical trials is critical. Read here about one researcher's clinical trial progress.
Caregiver of the Month for June: Sherry Codner
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Sherry Codner shares her story.
It’s Time: The Life Raft Group Biomarker Testing Campaign – Standard of Care
If you know your mutation, you have a better chance of getting the most effective treatment more quickly, and increasing your survival time. Making biomarker testing a standard of care will ensure that patients & medical professionals are fully informed so that treatment will be more effective.