The INTRIGUE study is a Phase 3 clinical trial testing the investigational drug ripretinib (DCC-2618) for patients living with GIST that are no longer on imatinib due to progression or intolerance.
Norman Scherzer was invited to speak at three prestigious events this spring; participating in a roundtable discussion, presenting a cancer survival plan, and speaking to a patient advocacy group. As a direct [...]
The Life Raft Group held a GIST Day of Learning (GDOL) in Tampa, at Moffitt Cancer Center, on May 16th, 2019. This was the first GDOL presented in Tampa. GDOLs are free, one-day programs [...]
OVAC is a coalition of over 50 nonprofit cancer organizations that advocate on behalf of cancer patients to deliver a unified message to Congress and to the White House on the need for increased [...]
[Please note that GIST Peer Support program has been renamed the GIST Mentor Program 11.5.19]. Last month, we posted information on our new program to support our members. The GIST Peer Program is an additional support system to help patients and their caregivers through a very difficult time in their lives. Why? They may just be finding out they or a loved one has GIST, or they are experiencing a recurrence and they want to be able to talk with someone.
The Future of RWE & Improving the Quality of Patient Survival Two members of The LRG staff recently attended the annual ISPOR meeting in New Orleans. ISPOR (International Society for Pharmaceutical Economics and Outcomes [...]
At 39-years-old, Fatema Suterwala was preparing to say goodbye to her husband and young son. Confused by this cruel twist of fate and wracked with pain, she was saved by a collaboration of medical [...]
ASCO 2019 LRG Directors attended the Annual American Society of Clinical Oncology (ASCO) Conference to network and research collaboration possibilities among over 40,000 doctors, researchers, pharmaceutical companies, and other patient advocacy groups. Left [...]
Dear Nikki, You have left us too soon, but your presence will be felt far and wide for a very long time. From the moment I first spoke with you on the phone, I [...]
Adriana’s journey with cancer began 15 years ago. After conquering Stage 3 breast cancer, she changed her professional path and poured her skills, talents, and experience into serving other cancer patients. In 2004, Adriana, [...]
