The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Restructuring Clinical Trials to Find a Cure
Research!America and the Pancreatic Cancer Action Network held a meeting in New York this year to discuss ways to restructure clinical trials to find a cure for cancer.
Pfizer Patient Program becomes Pfizer RxPathways
As of April 01, 2014 All Pfizer Patient Assistance Programs have been consolidated into one program called Pfizer RxPathwaysTM.
Camp Kesem Provides a Week of Fun to Children of Cancer Patients
Approximately less than one minute into talking with Mariel and Terrance Pridmore, one thing became very clear—they cannot wait to go back to camp.
Complete Resection May Result in Long-Term GIST Survival
The results of a retrospective study indicated that patients with metastatic gastrointestinal stromal tumors (GIST) who are able to achieve complete macroscopic surgical resection of their disease may be able to achieve long-term survival.
LRG Appreciation Event brings together local supporters
In this spirit of appreciation, the Life Raft Group invited the local GIST community to a special dinner just to say thanks.
Life Insurance and Cancer
People around the world acquire life insurance policies for different reasons. It’s a common approach to protect one’s assets and cover debts should any life-changing circumstance occur, such as cancer.
GDOL Miami Attracts Large Attendance This Year
Over 80 GISTers and their loved ones gathered from all over to attend the 3rd annual GIST Day of Learning (GDOL) in Miami, held on February 9, to hear from the team of experts at University of Miami Sylvester Cancer Center.
Tissue Bank Update – Resistant Tissue is Scarce
In recent years we have been able to gain valuable information from the data produced by tissue donations to the GIST Collaborative Tissue Bank.
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
