The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Actualización realizada por dos prestigiosos especialistas internacionales en GIST
Publicado por Colectivo GIST España - Concluimos el mes dedicado a la concienciación del sarcoma & GIST publicando una actualización del tratamiento para los tumores GIST avanzados.
‘Educa GIST’ por Fundación GIST Chile
¿Necesita información sobre el GIST en español? Fundación GIST Chile ha creado un portal educativo sobre los cánceres gastrointestinales, incluido el GIST.
Feis Off! Water of Life Event Hosted by Dr. Matt Lurin
Festival Season is always a fun time in Scotland, and many folks make annual pilgrimages to some of their favorite distilleries including our own Water of Life Host, me, Matthew Lurin. However, in times of pandemics these festivals were cancelled and many fans were unable to take flights and drives and ferries to see their friends.
Q&A with SDH Panel of Experts Yields Promise for the SDH-deficient GIST Community
The Life Raft Group celebrated GIST Awareness Day 2021 by holding an virtual, interactive Q&A session for SDH-deficient GIST patients with leading experts in the field.
GIST Do It Walk NJ 2021 Sponsorships Available!
GIST Do It Walk NJ is October 2 and you can be a sponsor for this event to further #GISTresearch and for exposure for your business.
‘It’s Time’ to Continue Our Message About Biomarker Testing!
So far in 2021, our 'It's Time' campaign has emphasized twelve important points concerning biomarker testing and the important role it plays in a GIST patient's journey. We will keep the momentum going with patient stories, webinars, and resource materials.
Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021
Las organizaciones de pacientes de América Latina celebran el Día de la Concientización del GIST 2021.
Executive Director Scherzer Speaks at Advocacy Seminar on Chronic Disease Day
On Wednesday, July 14th, the LRG's Executive Director Norman J. Scherzer joined a renowned group of speakers for the Chronic Disease [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
