The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
GIST & Creativity – Gewelry for GIST with Christine Gonzales
Christine, a former elementary school teacher, is raising three sons with husband Adam, in New Mexico. She doesn’t feel that creativity has always had a place in her life, but teaching elementary school always provides opportunities for innovation and creative thinking so perhaps it’s a matter of perspective.
GIST & Creativity – Art Quilter, Crafter, Teacher Claire Monaghan
GIST happened soon after her first quilt was accepted into a quilt exhibit and after participating in her first holiday craft show last December. Every GIST patient has a unique story about how they were diagnosed and where their journey takes them but Claire can literally credit a recurrence of her sister's ovarian cancer in January as the reason she found her GIST tumor.
GIST & Creativity – Sculptor & Public Artist, Tim Watkins
You may have spotted a creation by May & Watkins Design and not even realized it. They create public art, or industrial sculptures – art that is commissioned for public spaces. The partnership of artists, Carol May and Tim Watkins, began after meeting as 20-somethings on scholarship at the Skowhegan School of Painting & Sculpture in Maine.
GIST & Creativity – Industrial Designer, John Paul Zagami
Pratt institute graduate, John Paul Zagami studied industrial design. John’s journey with GIST began with unexplainable digestive issues. After suffering a kidney stone attack which led to an ER visit, a mass was found.
Points of Light for 2020
Despite the challenges of Covid, the LRG has quickly developed new ways of working together virtually. We have kept afloat and served our community well during this dark year. These points of light show just how far we've come this year.
Women in Sarcoma Virtual Gala Recap
The first annual Women in Sarcoma gala was held virtually on Thursday, December 10th, 2020. It was a fantastic evening where the Life Raft Group celebrated some phenomenal women within the community.
Normal Life Interrupted
Angel Selena Rodriguez was living what she considered a very normal life. She was studying medicine, playing violin in an orchestra, and enjoying painting and drawing, and university in Venezuela.
Delivering Hope: A Modern Day Miracle of Birth
April Lopossa was faced with a daunting decision - to take Gleevec for her newly diagnosed GIST pre-surgery or wait until she delivered her unborn child.
GLOBAL PARTNERS & AFFILIATIONS
