The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
New Technology Developed Which Can Predict GIST Patient’s Response to Drugs with Amazing Accuracy
Researchers have developed a test that can accurately identify over 20% of GIST patients that are unlikely to respond to currently [...]
GIST Updates from the ASCO Annual Meeting 2018
Executive Director, Norman Scherzer, and Real World Evidence Data Scientist, Dr. Yu Wang, of the Life Raft Group recently attended the [...]
ISPOR Conference Sheds Light on Patient Experience Data
In May 2018, the International Society for Pharmacoeconomics and Outcomes Research (ISPOR), invited the Life Raft Group to the ISPOR 10th [...]
GIST Updates: SPAEN and ESMO 2018 Meetings
Senior Director of Program Operations, Sara Rothschild, recently represented the Life Raft Group at the SPAEN (Sarcoma Patients EuroNet) meeting. Subsequent [...]
Deciphera Pharmaceuticals Announces the Start of Phase 3 Clinical Trial with DCC-2618 in GIST
On January 4th, 2018 Deciphera Pharmaceuticals, Inc, announced the start of the Phase 3 INVICTUS trial. This randomized trial [...]
15 Years-15 Wishes for 2018 from the Life Raft Group
As we celebrate our 15th year as a non-profit, we at the Life Raft Group would like to share [...]
It’s a Journey: Our Experience on Clinical Trials
By Jennifer Moore, LRG Member I was waiting in line to pick up a new prescription for Gleevec when my husband [...]
Why Do Cancer Patients Join Clinical Trials?
At the most basic level, cancer patients join clinical trials because of perceived value and perceived cost. In this context, perceived [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
