The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
LRG patient registry: powerful tool for patients, physicians and researchers
The time it takes between the appearance of first symptoms of a rare disease and when the correct diagnosis is given, is [...]
PAWS-GIST Cancer Clinic Opens in the UK
Jayne Bressington, Patient Director of the PAWS-GIST Initiative & Trustee of GIST Support UK The first national Pediatric, Adolescent, Wild-type [...]
Giving back: Annual “DeLo” barbecue benefits LRG
The De Lorenzo boys, Gregory John and older brother Simon Joseph On September 6th, Jason De Lorenzo continued his annual [...]
Virtual roundtable about GIST with Jerry Call
Jerry Call, Science Director On Wednesday, September 17, the Life Raft Group hosted “Virtual Roundtable with Jerry Call,” the [...]
GIST Sarcoma Life Raft Group Canada announces 3rd Annual day of learning
GIST Sarcoma Life Raft Group Canada held its 3rd Annual Day of Learning on October 18, 2014 from 10:00 am to 5:00 [...]
Pfizer Releases New Dosage for Sutent Patients
Sutent 37.5 mg Ease of use and lower costs may be on the horizon for Sutent patients who are [...]
NIH Wildtype GIST Clinic for 2015 Announced
A Wildtype GIST Clinic has been announced by the National Institutes of Health, USA. The upcoming “Pediatric and Wildtype GIST Clinic” at [...]
In loving memory of Louise Ladd, LRG Member
Louise Ladd (1943-2014) of Fairfield, Connecticut, who was deeply loved by her mate, Doug Taylor, and family, passed away at the age [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
