Patient Registry

NIH Pediatric & Wildtype GIST Clinic 2021 Applications Are Open!

The LRG will be collaborating with the NIH again in 2021 to hold the Virtual GIST Tumor Board in place of the NIH's Pediatric & Wildtype GIST Clinic normally held in the DC area. Applications to have cases reviewed are now open.

By |2021-04-23T10:48:08-04:00April 29th, 2021|News, Pediatric GIST, SDH-Deficient GIST|

NCI Mentions LRG as Component in Development of Ayvakit

In a new article from the NCI concerning the January 2020 approval of Ayvakit, (produced by Blueprint Medicines) the Life Raft Group is acknowledged in the section, “Capturing the Patient Experience.” We are proud to have played a role in supporting the research involved in bringing a new treatment to market for GIST patients.

By |2020-02-07T14:23:48-05:00February 7th, 2020|D842V, Drug Treatment, News, Patient Registry|

The Life Raft Group Research Model – LRG Science

PDF is available of LRG Science to print here. Real World Evidence in Action Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges [...]

By |2019-05-05T14:20:27-04:00February 21st, 2019|LRG Science, News, Newsletter, Research|

Real World Evidence in Action: The LRG Research Model

Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges regarding patient survival. Randomized clinical trials (RCTs) driven by lab-based research have been the gold standard for identifying new [...]

By |2019-02-20T08:46:19-05:00August 15th, 2018|News, Research|
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