GIST Survivor is a private group and only members can see who is in the group and what is posted. The group is for GIST survivors who are searching for a cure and living well along the way. Currently 1,235 people are members of the group and this number is increasing daily. The Life Raft Group is partnering with GIST Survivor to support the patients, caregivers, and family members affected by GIST that make up this membership.
“The goal of the GIST Survivor group is to share information related to GIST, to support one another in our journeys, and to increase the chances of us beating this disease. We are now partnering with the Life Raft Group, a non-profit organization dedicated to enhancing survival and quality of life for people living with GIST. Look for posts of support and information from their staff that will help us further our knowledge of the most current treatments, manage side effects of drugs, and help us all to live our best lives.”
– Kimberly Trout Glass
The GIST Survivor group rules are:
1. Be Kind.
Share your experiences to be helpful to one another. State your opinion, but don’t be rude. Please do not degrade medical professionals; they are human too, they make mistakes, and have poor judgment sometimes.
2. No Promotions or Spam
Give more than you take to this group. Self-promotion, spam and irrelevant links aren’t allowed.
3. Respect Everyone’s Privacy
Being part of this group requires mutual trust. Authentic, expressive discussions make groups great, but should also be sensitive and kept private. What
is shared in the group stays in the group.
4. Be respectful of others
Personal beliefs may not be forced on others.
Use language that doesn’t offend others.
You can find GIST Survivor on Facebook: