Patient of the Month for August: Debi Granus
Patient of the Month: August As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 [...]
Patient of the Month: Santy DiSabatino
Our Patient of the Month for July is Santy DiSabatino. Here is his story: "I remember the first time I heard the word GIST. I was in the recovery room after having a colonoscopy and endoscopy done due to what was perceived as a stomach issue (not truly related to the GIST) and due for a ten-year colonoscopy.
Believe in Hope – A GIST Story
This story is shared by Virginia Terrebonne, GIST Patient and LRG Member, and is part of our Faces of Courage series. My name is Virginia VanMeter Terrebonne. I am a 56-year-old female originally from [...]
It’s a Journey: Our Experience on Clinical Trials
By Jennifer Moore, LRG Member I was waiting in line to pick up a new prescription for Gleevec when my husband ran in and told me to forget it. After two surgeries, a year [...]
Life Raft Group Canada’s 6th Annual GIST Day of Learning a Success
By Malcolm Sutherland Life Raft Group Canada (LRGC) held its 6th Annual GIST Day of Learning on October 21, 2-17 in Toronto. Topics Topics included: “Highlights from New Horizons GIST Conference”, presented by LRGC President [...]
Andrea Torres: A Story of Hope and Optimism
My name is Andrea Torres, and I am 24 years old. I am from Tegucigalpa, Honduras. I was diagnosed with GIST in December 2015 here in Honduras. I was 22 years old. It began [...]
In Loving Memory of Beverley Lynn Burrows
Life Raft Group Canada is mourning the loss of our dearly loved Vice-President, Lynn Burrows. Lynn was always a light-hearted and optimistic woman, in spite of her decade of struggle with GIST. Her smile could [...]
GIST Superhero Profile: Cindy Farr
In honor of our H.E.R.O. campaign, we are profiling our GIST Superheroes By Belinda Gist, Guest Contributor Romans 12:12 "Rejoicing in hope; patient in tribulation; continuing instant in prayer..." GIST Superhero Cindy Farr [...]
Collaboration Lays the Groundwork for Breakthroughs in GIST
This article originally appeared in the January 30th edition of Cure Today. Less than two decades ago, Gleevec (imatinib) drastically changed the frontline treatment for patients with gastrointestinal stromal tumors (GIST). However, as patients [...]
Support From The Heart – Caregiver Suzy Burke
My name is Suzy Hetherton Burke, I’m 66 years old and happily retired! I grew up in New Jersey, graduated from Rosemont College in PA and moved to NYC after graduation. Charlie and I met, [...]