Cancerversary – Martha Zielinski – 14 years
On January 14, 2003 when I had surgery to remove my GIST I never dreamed I would still be here 14 years later! So little was known about this cancer, at that point the [...]
Cancerversary – Kimberly Glass – 10 years
I celebrate my ten-year “cancerversary” on January 31st. I can’t believe it’s been 10 years! I will celebrate by spending some intentional time with my family, including my beautiful 16 month-old daughter, Katelyn. My [...]
Time for Medicare Comparisons is Here
Melissa Simpson, Senior Program Manager, Center for Benefits Access, National Council on Aging By Melissa Simpson, Senior Program Manager, Center for Benefits Access, National Council on Aging Generally, we like choices. But, when [...]
LRG Member La Verne Cook: Tackling side effects
La Verne Cook Side Effects can impact quality of life. Members sharing their stories and their strategies for coping with side effects can help others. In this article, LRG member La Verne [...]
Cancerversary – Mike Ginsberg 10 YEARS
“Thanks Life Raft Group and Gleevec for the gift of time! Little grandchildren in this picture I would have never have known, and my participation in Bar Mitzvahs, weddings, birthdays, sports events, all make [...]
Cancerversary – Paula Vettel 15 YEARS
“I am so fortunate to be celebrating 15 years of continued life, thanks to Gleevec. I have enjoyed life with my wonderful husband Phil, and seen my boys grow into men. I am looking [...]
14th NIH Pediatric and Wildtype GIST Clinic Convenes
If you have a mutation of any of the SDH subunits (a,b,c, or d), the next important question to ask is whether or not it is a germline mutation. (So far, data has indicated that 80% of SDH-deficient tumors are germline). The term "germline" means that the mutation is present in every cell of your body. Germline mutations are hereditary, and can be passed on to your children. For this reason, genetic testing and counseling could be informative for parents, siblings and other family members. If a family member tests positive for the mutation, this does not mean that they will get GIST.
10 Things That Happen When You’re Diagnosed With Cancer
Cancer. We all know someone who has it or we know someone who knows someone who has it. Either way, it’s a subject that is kind of taboo. Firstly, the majority of the population think when they first hear the big C-word is that you’re going to be bald, you only get cancer when you’re old and you probably (hopefully not) will die.
Cancerversary – Ed Cohen 9 YEARS
“My GIST tumor was removed by a skilled surgeon nine years ago this coming Father’s Day, giving me the present of continued life. Shortly after the surgery my wife and I found the Life [...]
Team J’s Ride Across America (RAA) 2016
Members of Team-J's Charity Bicycling Team are planning to bicycle in Ride Across America in support of two causes; Hydrocephalus Awareness - www.hydroassoc.org GIST Pediatric Cancer Awareness - www.liferaftgroup.org Donate Now TEAM-J's local [...]