LRG Bear on the Chair Gallery
Top GIST Specialists Present at California GDOL
On Sunday, November 15, the last GDOL in the 2015 series was held in Orange County, California at the Fullerton Arboretum. GDOL stands for GIST Day of Learning, a free, one-day program that [...]
Genetic Alliance Event Invites Collaboration
Genetic Alliance recently held an event in Chapel Hill, N.C. that brought together patient advocates, scientists and representatives from the pharmaceutical industry in a unique “speed-dating” format. Disease advocacy organizations were invited to present briefly [...]
Society for Integrative Oncology Holds 12th Annual Conference in Boston
The Society for Integrative Oncology (SIO) was developed to advance evidence based, comprehensive, integrative healthcare to improve the lives of people affected by cancer. The 12th Annual SIO Conference was held in Boston in [...]
On the Road with the LRG Patient Registry
Michelle Durborow with Rodrigo Salas, LRG board member, at tenth annual ICORD meeting. The tenth annual ICORD meeting was held in Mexico City on October 13-14 with the theme “A Decade of Discoveries and [...]
Encouraging Rare Disease Connections at the NORD Conference
The National Organization for Rare Diseases (NORD) held its 2015 Breakthrough Summit October 21-22 in Arlington, Virginia. This year’s event convened top leaders from the FDA, NIH, Industry, Patient Groups, Payers and Research Institutions to [...]
Patient-Centered Care Focus of Quintiles Panel Discussion
Executive Director, Norman Scherzer participated in a panel discussion as part of the Executive Vision Forum Series hosted by Quintiles Advisory Services on Friday, November 6 in the Alexandria Center, NYC.The panel, entitled “Working within [...]
Partnering for Cures Seventh Annual Meeting Held in NYC
The 7th Annual Partnering for Cures meeting hosted by FasterCures was held Nov. 1-3 in NYC with more than 750 movers and shakers from patient groups, pharma, academia, government and industry. Some notable participants included: [...]
LRG Bear on the Chair: 31 Days to Raise GIST Awareness
Last year, the Life Raft Group had a very successful campaign in the month of December, #GIST31Wishes. This year, we want to make those wishes come true with a campaign that encourages action. A [...]
Patient Advocacy: You Can Make a Difference
At The Life Raft Group we are thankful to have a strong and motivated member community. Despite dealing with their own diagnoses, ongoing care and side effects, members often tell us, “I want to [...]