Survive & Thrive with GIST
Ten Tips for Life with a Rare Disease The challenges of living with GIST are many - here are our top ten tips to navigate this journey toward thriving and surviving. 1. Get a [...]
Coping for Caregivers – Preparing for a Hospital Stay
Caring for a loved one is filled with day-to-day stressors. But what about the stressors that are out of the ordinary? Any hospitalization is stressful. Preparing for the hospital to the extent possible can [...]
GIST Resolutions
With the start of a new year, there is an opportunity to make positive changes. Cancer patients face dramatic change in their lives, and chances are they have already experienced a time of reflection [...]
Overcoming the Holiday Blues
Everywhere you turn, the sights and sounds of the holiday season assail you. Before the Halloween candy is sorted and the Thanksgiving turkey is cold, we are reminded of what some call “the most [...]
Sharing Health Conditions with Your Employer
Sharing health conditions with your employer can be a difficult yet important decision you may have to make. Maybe you’ve been diagnosed with a serious health condition recently or you may always have had [...]
Coping with End of Life Issues
Although breakthroughs in cancer treatment have contributed to longer survival rates, the reality is that sometimes treatments stop working, and a cure or remission is no longer possible. Referred to as advanced, terminal. or [...]
SoCal Support Group Meeting for GISTers
Dina Wiley, SoCal Group Leader On August 11, 2018, a group of GISTers in Southern California gathered informally to share knowledge, resources, and personal stories about their journeys with this rare disease. [...]
Coping With Grief and Loss
The loss of a loved one leaves a hole in our lives that cannot be filled. Each individual deals with his or her own grief process in their own way, but all of us share [...]
Social Media Helps Rescue Croatian Patient
Danijel Romic with his 2 children Danijel Romic, a 34-year old GIST patient from Crikvenica in Croatia, was faced with a challenge. Diagnosed with GIST in 2014, he did not have access [...]
Tips for Summer Safety
Many people love the warm sun, beaches, and gardens, but along with those beautiful summer days comes the threat of sun damage. What does this mean for GIST patients?