GIST Awareness Day 2020
GIST Awareness Day, July 13th, 2020 All GIST Awareness Day Celebrations for 2020: Spain Colombia WolfStrong Team U.S. Mexico UK (Britian) Chile India Hungary Pharma The theme of GAD was #GISTHope. 2020 brought a [...]
GIST Awareness Day 2020 – Hungary
András Szekfü, of Budapest, Hungary, shares his GIST journey in this video for GIST Awareness Day, a day set aside to bring awareness of this disease.
Life Raft Group Launches GIST Cook Cookbook with Cooking Demonstration
The LRG is hosting a virtual cooking demonstration with Chefs Rosemary and Drew Gabbe of The Fruited Plain of Parsippany, NJ, to launch our newly released cookbook, GIST Cook.
Life Raft Group Collaborates on White Paper Published by Cancer Leaders
The Life Raft Group has been an integral part of a pan-cancer Working Group designed to determine consistent terminology around biomarker or mutational testing. The goal is to communicate to patients and the larger community in plain, patient friendly and consistent language what these terms mean, and how they impact on precision medicine.
Blueprint Medicines Announces Publication in The Lancet Oncology
Blueprint Medicines Announces Publication in The Lancet Oncology Showing Durable Clinical Benefits of AYVAKIT™ (avapritinib) in NAVIGATOR Trial Patients with PDGFRA D842V Mutant GIST.
Help Us Celebrate GIST Awareness Day with #GISTHope
For GIST Awareness Day, to celebrate our theme of #GISTHope, we’re asking you to spread the word about GIST on social media and out in the world.
Heroes on the Frontline: Dr. Jonathan Trent
The LRG was fortunate to get a few minutes with GIST specialist, Jonathan Trent, MD, Sylvester Comprehensive Cancer Center, who shared his experience with his patients over the past few months during the coronavirus pandemic.
Heroes on the Frontline: Eric Lindberg
Eric Lindberg, diagnosed with GIST in 2017, works as an emergency room nurse and has been on the frontlines throughout the COVID-19 pandemic.
Heroes on the Frontline: Dr. Matthew Lurin
Q&A with a LRG Major Donor & Fundraiser
Long-Term Survivor Stories – Chuck Korte & Dina Wiley
For GIST patients, long term survival is the ultimate goal. A number of factors may influence long term survival – some of these are demographic and clinical, like mutational subtype and genetic factors. However, there are a number of others that are perhaps more subtle, such as lifestyle, attitude, and access to treatment, experts, and advice.