Patient of the Month for February: Kirk Clark
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Patient of the Month for January: Theresa Rogers
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Faces of Courage – Eve Evidon
My GIST Journey In early December 2008, I acknowledged that my stomach was not feeling normal. I felt better when I skipped meals and instinctively knew something was seriously wrong. I met with my [...]
Coping for Caregivers – Preparing for a Hospital Stay
Caring for a loved one is filled with day-to-day stressors. But what about the stressors that are out of the ordinary? Any hospitalization is stressful. Preparing for the hospital to the extent possible can [...]
Chile Cancer March Brings Change – Advocacy in Action!
Patients and Caregivers March! On December 4, 2018, President Sebastián Piñera, of Chile, signed the National Cancer Plan 2018 – 2028 and the National Cancer Law. LRG Global Consultant and Executive Director of Fundación [...]
New in SDH-Deficient Research – The Paraganglioma* Preclinical Project
The Pediatric SDH-Deficient GIST Consortium, which was launched at the Biden Cancer Summit, consists of an impressive team of researchers, clinicians, academics, and patient advocacy groups. A member of our consortium, Dr. Joshua D. [...]
Global Representative Spotlight – Verónica Armand Ugón, Uruguay
I am 45 years old and I live in Tarariras, a small city of Colonia, Uruguay. I am married and I have three wonderful children: Matías (18 years old), Tomás (15 years old) and [...]
Searching for Hope
In this article, Mom Glenda Swinbourn of Australia shares the story of her son Mitchell, a 13-year old with Carney-Stratakis Dyad. It is for patients like Mitch that the Pediatric & SDH-Deficient GIST Consortium was founded.
Patient of the Month for December: Wanda Sebestin
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Faces of Courage
For our 2018 Holiday Campaign our theme is you. The Faces of Courage. We will be featuring some stories throughout the holiday season that show the many faces of courage. We also want our [...]