Survive & Thrive with GIST
Ten Tips for Life with a Rare Disease The challenges of living with GIST are many - here are our top ten tips to navigate this journey toward thriving and surviving. 1. Get a [...]
Pediatric & SDH-Deficient GIST Consortium Update
Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]
A Conversation with Breelyn Wilky, M.D.
Dr. Breelyn Wilky answering questions on a panel of GIST experts at Life Fest Miami, 2018. Colorado, Clinical Trials & Immunotherapy Dr. Wilky, Director of Sarcoma Translational Research at the University of [...]
Crossing the Finish Line
I never thought that I would be sitting at the same table with Senators from my country while voting for a law that will potentially dramatically change the lives of cancer patients in Chile. [...]
GIST is a Marathon, Not a Sprint
Overall survival in GIST patients has improved dramatically over the years. In 2019, the median Overall Survival (OS) is over 12 years when all Life Raft Group registry patients are combined. About 80% of [...]
The Life Raft Group Research Model – LRG Science
PDF is available of LRG Science to print here. Real World Evidence in Action Although targeted medicine has brought about immense progress in cancer treatment, there are still enormous challenges [...]
A Lively Liver: Monitoring Liver Health with GIST
The liver, located under the right rib cage, is the body’s largest internal organ and acts as a factory, regulating digestion, blood content, nutrient production and storage. The liver processes all that funnels through [...]
Patient of the Month for February: Kirk Clark
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Patient of the Month for January: Theresa Rogers
As part of our Faces of Courage Series, we are featuring a patient of the month on the 13th of each month. Why is the number 13 significant? 5,000 people are diagnosed with GIST each [...]
Faces of Courage – Eve Evidon
My GIST Journey In early December 2008, I acknowledged that my stomach was not feeling normal. I felt better when I skipped meals and instinctively knew something was seriously wrong. I met with my [...]