San Diego GDOL: Q&A
On January 24, the first GDOL (GIST Days of Learning) of 2015 brought together nearly fifty GIST patients, caregivers, family members and volunteers at the University of California San Diego Medical Center. A recap [...]
Clinical Trial Data Sharing: LRG’s Model for Collaboration
A recent report from the Institute of Medicine outlines the advantages of data sharing from clinical trials. The authors state that data sharing can lead to the discovery of new treatment modalities as well [...]
Advocating for Change: Cancer Breakthroughs Needed
A recent article in Forbes reports that although we are witnessing a time of historic breakthroughs in cancer treatments, we are lagging behind on policy breakthroughs in the development, funding and delivery of excellent cancer [...]
New Packaging For Gleevec In The U.S.
You may have noticed a new look for Gleevec when you refilled your 400-mg prescription.Novartis has introduced new packaging in the U.S. market that includes each individual tablet in a blister pack. This is designed [...]
Cancer Patients Rarely Request Unnecessary Tests
In spite of some medical professionals' claims to the contrary, cancer patients rarely request unnecessary tests or treatments according to a study cited in the JAMA journal Oncology. The study was completed at three [...]
LRG State Leaders Connect
On Wednesday, February 11, the Life Raft Group’s state leaders had their first opportunity to gather virtually and discuss best strategies for bringing together and building a support community for GIST patients and caregivers [...]
LRG Accepting Applications For Third Virtual GIST Tumor Board
The Life Raft Group is opening up the application process for our third Virtual GIST Tumor Board, date to be determined. This time we are expanding our applications to review all GIST cases from around [...]
NCI Team Identifies A key Molecular Defect In SDH Patients
Jim Hughes A National Cancer Institute team led by Paul Meltzer recently published a paper in Science and Translational Medicine entitled, “Recurrent epimutation of SDHC in gastrointestinal stromal tumors.” The findings have some potential implications [...]
Dr. Monica Anderson: Inspirational Survivor
updated 1/20/21 Dr. mOe is an author, survivor, and dynamic mOe-tivational speaker. Diagnosed with GIST in 2012, Dr. mOe believes that God does not waste wounds. She is a freelance journalist, coach, mentor, [...]
Understanding Generic Drugs
With the onset of the patent expiration on Gleevec of the patent expiration on Gleevec for CML expiring in July and for GIST in June 2022 in the United States, it becomes more important than ever [...]