The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
Member’s BBQ raises funds and awareness in Virginia
Life Raft Group member Jason DeLorenzo held his annual “DeLoBQ” fundraiser last month in Alexandria, Virginia. The BBQ has raised almost $2,000 [...]
New research supports role for crenolanib
A new study published by Clinical Cancer Research found that crenolanib is a potent inhibitor of imatinib resistant PDGFRA kinases associated with [...]
Pfizer offering Sutent support program
Pfizer Pharmaceuticals is offering Sutent in Touch, a program to support GIST patients on its drug Sutent. The program is free and [...]
Times series underscores LRG research team’s approach
The first in a series of New York Times articles by science writer Gina Kolata on new approaches to cancer treatment underscored the type [...]
What’s up, Doc? Social Media and Healthcare
Social Media, such as Twitter, Facebook and LinkedIn, are an integral part of the daily lives of millions of people all over [...]
Agreement in Guatemala to benefit GIST patients
An agreement to secure the entry of Gleevec for Guatemalan GIST and chronic myeloid leukemia patients was reached with the Central American [...]
Alianza GIST joins forces with Brazilian partner
Alianza GIST and Oncoguia have formalized a new partnership to work together to benefit GIST patients in Brazil. The first goal [...]
MSKCC Opens New Immunotherapy Trial for GIST
A new clinical trial combining targeted therapy with immunotherapy has just opened at Memorial Sloan-Kettering Cancer Center (MSKCC). This trial is [...]