The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Update your Patient Registry Info.
Join The Life Raft Group.
Current GIST Clinical Trials.
Search the GIST Specialist Database.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
Overcoming the Holiday Blues
For many, the holidays are challenging normally and for cancer patients, the expectations of a consistently happy mood may be unrealistic. If you are newly diagnosed, the realization of what treatment means is probably not yet fully absorbed.
In Memoriam – Carlos Alberto Baldor, Sr., Friend of the LRG & Major Donor
Carlos and Liana Baldor's daughter, Ana Maria Baldor-Bunn, died from GIST in 2002 after a two-year battle. Our In Memoriam website is dedicated to Ana and her father Carl who lost his own battle with cancer in April of 2020.
Have More Fun at the Women in Sarcoma Gala
Get Ready to Have Fun at the Women in Sarcoma Virtual Gala. Here are ways to up your fun and participate on this night when we honor the Women in Sarcoma award recipients.
Custo efetividade do teste genético para pacientes recém diagnosticados com GIST
Em um artigo publicado em 29 de setembro de 2020, na revista "JAMA Network Open", o Dr. Jason Sicklick, Moores Cancer Center, UCSD, e colegas relataram que o teste genético é custo-efetivo e benéfico para pacientes com GIST metastático recém-diagnosticados. .
Medicare Open Enrollment Period Ends December 7th
Concerning Medicare Open Enrollment: It is especially important for GIST patients to carefully consider available plans, as one of the financial support resources that has been available through Novartis Pharmaceuticals will end on January 1, 2021.
Patient of the Month for December: Leslie Pastén Rojas
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Leslie Pastén Rojas shares her story.
Paciente del mes de diciembre: Leslie Pastén Rojas
Cada miembro tiene una historia única, pero todos reflejan el coraje intrínseco de quien enfrenta el desafío de GIST. Leslie Pastén Rojas comparte su historia.
Dr. Thomas Mühlenberg Receives 2020 GIST Award
The 2020 GIST award goes to Dr. Thomas Mühlenberg of the University of Duisburg-Essen The GIST Group Switzerland, the support group [...]
Keep up with the latest news, events, and opportunities to help.
To contact The Life Raft Group, please call 973-837-9092
PARTNERS & AFFILIATIONS
