The Life Raft Group is committed to enhancing the survival and quality of life for people living with Gastrointestinal Stromal Tumor (GIST), and other rare diseases, through patient-powered research, education and empowerment, and global advocacy efforts.
Other Programs Supported by The Life Raft Group:
PATIENT
Leverage patient perspective to drive innovative solutions in cancer research.
POWERED
Educate and empower patients to take a larger role in their care.
SCIENCE
Accelerate research outcomes through collaborative efforts.
FOR LIFE
Increase access to effective treatments worldwide.
Real World Evidence In Action
Traditional models for cancer research have resulted in many breakthrough treatments for patients, but it is not enough. The LRG’s approach to GIST research through real world evidence, relies on timely, accurate data from the patient’s perspective, with patient survival as the primary objective.
RECENT LRG DATA
Did you know that GIST is actually a family of cancers? Learn more about the science of GIST.
Dr. Monica Anderson
Diagnosed in 2012 with Adult GIST.
Bella Rocco
Diagnosed in 2009 with Pediatric
(SDH-deficient) GIST.
HELP US SAVE LIVES
The Life Raft Group is a community and it is up to all of us to make a difference. There are many ways to help. We always need patient tissue and data in our GIST patient registry. Volunteering your time or making a monetary donation also helps us drive research forward and save lives.
News
LRG Receives COVID-19 Rapid Response Seed Grants from NORD
The National Organization for Rare Diseases (NORD) has awarded 19 seed grants to non-profit organizations that have been adversely affected by the COVID-19 pandemic. The pandemic has created a financial crisis for non-profits due to the cancellation of large events, particularly fundraisers upon which these organizations depend.
GIST Awareness Day 2020 – Kenya
Henzo Kenya celebrated GIST Awareness Day all week, July 12th to 17th, by sharing information about GIST and giving messages of hope.
Caregiver of the Month for July: Amelia Yeo
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Amelia Yeo shares her story.
GIST Awareness Day 2020 – Spain
Colectivo GIST Espańa celebró el Día de Concienciación de GIST (GIST Awareness Day) con una publicación sobre el tema. A [...]
GIST Awareness Day 2020 – Colombia
Fundación GIST Colombia & Fundación SIMMON & AlianzaGIST promoted awareness about gastrointestinal stromal tumors [...]
#WolfStrong Celebrates the Life of Ted Wolf for GIST Awareness Day
Tammy Wolf, wife of Ted, gathered in-person and virtually with family and friends to celebrate the life of Ted Wolf with a GIST DO IT Walk for GIST Awareness Day.
GIST Awareness Day 2020 – U.S.
Here are some contributions from LRG members in the US for GIST Awareness Day 2020. GIST Awareness Day was created by [...]
GIST Awareness Day 2020 – Mexico
Fundación GIST México celebrated GIST Awareness Day with these actitivities: Spot on local radio. "GISTJuntos" [...]
GLOBAL PARTNERS & AFFILIATIONS
