Ron Agypt – In Memoriam
Ronald George Agypt, 62, born in Johnstown, PA on June 3, 1956 to George Abraham Agypt and Mary Jane (Abraham) Agypt (both deceased), passed away on April 10th, 2019, at his home in Alpharetta, [...]
In Memoriam – Erlinda Adajar
Erlinda (Linda) Adajar, loving and dedicated wife, mother, grandmother, sister and friend, passed away on December 24, 2018 at Memorial Sloan Kettering Hospital in NYC. She was 77 years old. Linda was born on [...]
Global Representative Spotlight – Florence Thwagi, Kenya
My Journey with GIST My name is Florence Thwagi, and I am 53-years-old. I am an Executive Board Member of Henzo Kenya, an advocacy group that creates awareness and support GIST patients in Kenya. [...]
State Leader Spotlight – Wendi Lax
Wendi Lax is our wonderful state leader for Maryland. She is currently residing in Maryland, where she is helping the Life Raft Group create unity among the local patients and caregivers. For many years, [...]
Holiday Campaign 2018 Update
Each one of our members has a unique story to tell, but they all reflect the intrinsic courage of those who face the challenges of cancer head on, with dignity, strength and passion for [...]
Pediatric & SDH-Deficient GIST Consortium Update
Setting the Pace for the Future In July of 2018 at Life Fest, The Life Raft Group brought together a team of pediatric & SDH-deficient GIST experts for a symposium focused on this rare [...]
A Conversation with Breelyn Wilky, M.D.
Dr. Breelyn Wilky answering questions on a panel of GIST experts at Life Fest Miami, 2018. Colorado, Clinical Trials & Immunotherapy Dr. Wilky, Director of Sarcoma Translational Research at the University of [...]
GIST is a Marathon, Not a Sprint
Overall survival in GIST patients has improved dramatically over the years. In 2019, the median Overall Survival (OS) is over 12 years when all Life Raft Group registry patients are combined. About 80% of [...]
Overcoming the Holiday Blues
Everywhere you turn, the sights and sounds of the holiday season assail you. Before the Halloween candy is sorted and the Thanksgiving turkey is cold, we are reminded of what some call “the most [...]
Elsie María Hernández Saborío – In Memoriam
A tribute by Michael Josephy, LRG Contributor My dear wife, Elsie María Hernández Saborío, passed away August 7th after a long battle with GIST. I miss her greatly. Elsie was born and raised in [...]