Patient of the Month – September 2026: Alisha Tokumaru
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Alisha Tokumaru shares her story.
Understanding Metabolic Changes in SDH-Deficient GIST
Learn how metabolic changes in SDH-deficient GIST may drive tumor growth and inform emerging treatment approaches.
Pediatric & SDH-Deficient GIST Consortium Meets
The Consortium met recently to review current projects & goals focused on increasing research & advancing treatments for SDH-def GIST.
Pediatric SDH-Deficient GIST Clinic at the NIH
Patients and leading specialists came together at the 2026 NIH SDH and Ultra Rare GIST Clinic to advance knowledge and improve care for GIST.
Life Raft Research Award Recipients 2025
Our Summer Splash Match raised $60K which was awarded to three GIST researchers - Dr. Inga-Marie Schaefer, Dr. Matthew Hemming, and Dr. Jason Sicklick.
New Collaborative Study on Genomic Testing in SDH‐Deficienct GIST
The LRG and the Pediatric & SDH-Deficient GIST Consortium published a paper this February on Genomic Testing in SDH-deficient GIST.
New SDH Tissue Testing Collaboration with NIH & UCSD
The LRG is partnering with the NIH and UCSD to create the first ever tumor biobank in the U.S. focused specifically on SDH-deficient GIST.
Medical Advisory Board Member Dr. Sameer Rastogi, AIIMS Team Publish Study on SDH-deficient GIST
Medical Advisory Board Member Dr. Sameer Rastogi and the AIIMS Team Publish Study on SDH-deficient GIST titled, "Succinate dehydrogenase deficient GIST: Case series and review of literature from a tertiary care centre in India".
It’s Time to Tell The Stories: Our Good News – Global Impact – Sarah
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Sarah McGoram shares her experience as a patient advocate.
A Conversation with Dr. Jason Sicklick
In this interview with researcher & surgical oncologist Dr. Jason Sicklick shares about his passion for SDH-deficient GIST research.