Life Raft Research Award Recipients 2025
Our Summer Splash Match raised $60K which was awarded to three GIST researchers - Dr. Inga-Marie Schaefer, Dr. Matthew Hemming, and Dr. Jason Sicklick.
New Collaborative Study on Genomic Testing in SDH‐Deficienct GIST
The LRG and the Pediatric & SDH-Deficient GIST Consortium published a paper this February on Genomic Testing in SDH-deficient GIST.
New SDH Tissue Testing Collaboration with NIH & UCSD
The LRG is partnering with the NIH and UCSD to create the first ever tumor biobank in the U.S. focused specifically on SDH-deficient GIST.
Medical Advisory Board Member Dr. Sameer Rastogi, AIIMS Team Publish Study on SDH-deficient GIST
Medical Advisory Board Member Dr. Sameer Rastogi and the AIIMS Team Publish Study on SDH-deficient GIST titled, "Succinate dehydrogenase deficient GIST: Case series and review of literature from a tertiary care centre in India".
It’s Time to Tell The Stories: Our Good News – Global Impact – Sarah
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Sarah McGoram shares her experience as a patient advocate.
A Conversation with Dr. Jason Sicklick
In this interview with researcher & surgical oncologist Dr. Jason Sicklick shares about his passion for SDH-deficient GIST research.
It’s Time to Tell The Stories: Our Good News – Research – Dr. Sicklick
Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Dr. Jason Sicklick discusses his research in SDH-deficient GIST.
New Horizons – SDH-deficient GIST Research Update
Dr. Shruti Bhargava, University of California San Diego, presented SDH-deficient GIST Research Updates at New Horizons 2021.
New Studies Published on SDH Models and GIST Research
Two new studies were published in July and August 2021 focusing on SDH-deficient tumor models and how location can affect GIST tumor profiles and drug sensitivity.
Genetic Testing Recommended for SDHx Mutation Carriers
This study strongly recommends genetic testing and regular biochemical testing and clinical exams for SDHx mutation carriers.