SDH-deficient GIST

Medical Advisory Board Member Dr. Sameer Rastogi, AIIMS Team Publish Study on SDH-deficient GIST

Medical Advisory Board Member Dr. Sameer Rastogi and the AIIMS Team Publish Study on SDH-deficient GIST titled, "Succinate dehydrogenase deficient GIST: Case series and review of literature from a tertiary care centre in India".

By |2023-01-20T11:24:50-05:00January 19th, 2023|News, Research, SDH-Deficient GIST|

It’s Time to Tell The Stories: Our Good News – Global Impact – Sarah

Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Sarah McGoram shares her experience as a patient advocate.

By |2022-12-22T13:26:56-05:00December 22nd, 2022|Advocacy, Fundraising, News|

It’s Time to Tell The Stories: Our Good News – Research – Dr. Sicklick

Our Good News Holiday Campaign is the culmination of our year of "Time to Tell the Stories 2022." In this series, we celebrate the connections, the celebrations, the events and milestones that we’ve been privileged to be a part of this year. Dr. Jason Sicklick discusses his research in SDH-deficient GIST.

By |2022-12-15T11:09:50-05:00December 15th, 2022|Fundraising, News, Patient Support, Research|

Colectivo GIST España – la importancia de conocer la mutación de tu gist – SDH – Abril 8, 2021

Lea el artículo para Colectivo GIST España sobre la importancia de conocer la mutación de tu gist - succinato deshidrogenasa - Abril 8, 2021

By |2021-04-08T12:27:58-04:00April 8th, 2021|Global, News|

Virtual Life Fest 2020: SDH Panel Summary

Over fifty participants attended a virtual meeting of SDH Experts in honor of GIST Awareness Day, July 13th, during Virtual Life Fest 2020. Questions were presented to the panel which included One of the first questions asked was “what specifically are your most challenging research hurdles and how can we, as patients and patient advocates from around the world help move research forward?”

By |2020-09-09T14:20:33-04:00August 31st, 2020|Events, News, SDH-Deficient GIST|

RARE Partnership in Advocacy, Funding, and Research for Gastrointestinal Stromal Tumor

Partnerships and collaborations are critical to the progress of research in rare diseases. GIST specialist & Pediatric & SDH-Deficient GIST Consortium member, Dr. Jason Sicklick, and LRG member, Debra Melikian, are working together find a cure for succinate dehydrogenase-deficient gastrointestinal stromal tumors (SDH-deficient GIST), a hereditary rare cancer syndrome which claimed the lives of Debra’s husband and her son Merak.

By |2021-01-13T11:53:21-05:00July 14th, 2020|Advocacy, News, Research, SDH-Deficient GIST|
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