Chicago Patient Support Group
The Chicago Area GIST Patients Support Group made history this year! This group has been meeting the longest of any LRG support group - continuously since 2002.
A Few Minutes with GIST Expert – Dr. Gina D’Amato
Dr. D’Amato’s passion for her patients guides her on this newest leg of her professional journey in Miami with mentor and GIST expert clinician and researcher, Dr. Jonathan Trent.
Global Representative Spotlight
As a representative for the country, I would first like to identify the number of GIST cases in the country. My next task would be to raise awareness about this tumor, and let people realize that it is manageable with medical treatment.
LRG Cookbook Fundraiser
The Life Raft Group’s Outreach & Engagement department is excited to announce that we are launching a LRG community cookbook which will be sold at the upcoming Life Fest in July 2020.
GIST CHAT 101: Learn the Basics
This webinar teaches the basics of The Life Raft Group's new software, GIST CHAT, which will replace our patient ListServ.
LRG Webcast Series: Dental Healthcare in GIST
Dr. Nikhil Guhagarkar discusses the dental and oral complications of drugs used in GIST treatment and treatment of these side effects.
LRG Webcast Series: Updates on the Temozolomide Trial
Dr. Jason Sicklick of Moores Cancer Center at the University of California San Diego talks about the Phase II study of Temozolomide (TMZ) in advanced SDH-mutant/deficient GIST, a new study available to patients with SDH-deficient GIST.
Medicare 101: An Overview of the A, B, C, and Ds of Medicare
Kathy Sarmiento presents, The A B C’s of Medicare: Everything you need to know. Kathy explains everything from medicare costs and eligibility, to finding the right path for you.
GIST Awareness Day – Mumbai, India
Patient Support Group meeting on GIST Awareness Day in Mumbai, India, 2019.
Informational Webinar on Avapritinib Clinical Trial Program in GIST
Blueprint Medicines hosted a webinar for the GIST patient and caregiver community about Avapritinib, an investigational medicine for people with advanced GIST.