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So far LRG Staff has created 569 blog entries.

NIH Clinic shares information on 3 trials

The Clinic is a collaboration between clinicians and researchers to collect data, investigate and develop treatment for Gastrointestinal Stromal Tumor patients who do not have either c-KIT or Platelet -Derived Growth Factor Receptor alpha (PDGFRA) mutations. This includes patients with Carney’s Triad, Carney- Stratakis Dyad, and Wildtype GIST. These tumors frequently stain negatively for a protein called Succinate Dehydrogenase, a condition referred to as being Succinate Dehydrogenasedeficient (SDH-deficient). There are currently three clinical trials in development for this population.

By |2019-09-20T13:54:00-04:00August 1st, 2012|Clinical Trials, News, Pediatric GIST|
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Coping with GIST – Tips for Caregiving Long Distance

Caring for a family member or friend with cancer who lives far away has its unique challenges. All of the usual caregiving concerns about a loved one's health and well-being may be intensified, since long-distance caregivers can't be physically present to provide care at all times.

By |2019-07-03T11:47:08-04:00June 29th, 2012|Coping with GIST|
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I found a friend in the LRG

I was caught up in a whirlwind when I found out that I had cancer on a Monday morning in October of 2011. I was admitted to the hospital that same day in preparation to have emergency surgery the next morning to remove the tumors and then found out I had GIST - all in a 24 hour period! I felt like my world had turned upside down and shortly after that during my recovery, I was lucky enough to find Life Raft.

By |2019-09-20T14:25:37-04:00June 1st, 2012|News|
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Ninth Swiss meeting covers uplifting topics

About 80 GIST patients, relatives, GIST experts, interested professionals, physicians and representatives of the pharmaceutical industry gathered at the Restaurant Au Premier at Zurich Main Station in Zurich on April 8 for the ninth meeting of the Swiss GIST group. A warm welcome was extended to special guests Candy Heberlein, President of the Swiss Foundation for the Promotion of Bone Marrow Transplantation, and Christel Jäger-Freysoldt, chief executive of Das Lebenshaus in Germany.

By |2019-09-20T14:40:30-04:00June 1st, 2012|News|
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Norman Scherzer Discusses the Founding of the Life Raft Group and the Importance of Gleevec

Executive Director Norman Scherzer talks about the founding of the Life Raft Group and the importance of Gleevec in the fight against GIST (Gastrointestinal Stromal Tumor).

By |2018-08-06T10:51:52-04:00May 31st, 2012|Video|
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Spunky Texan fought GIST bravely

Betty Hayes Arnett went to be with our Lord and Savior Tuesday, Feb. 28, 2012 at age 64, after a long and courageous battle with cancer. She was born Aug. 23, 1947 to Ruel and Mattie Hayes in Corsicana, Calif. She was a beloved mother, grandmother and wife. She was a longtime member of Missionary Baptist Church of Corsicana.

By |2019-09-20T14:51:42-04:00April 1st, 2012|In Memoriam, News|
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First Harness a Cure a Huge Success

Twelve year GIST survivor and former harness driver, Bobby Kinsey, had two goals when he started planning “Harness a Cure” – to raise awareness about GIST and raise money to cure this disease. With over one hundred participants in the walk and donations continuing to arrive, Dover Down’s first Harness a Cure event to benefit the Life Raft Group’s research was a huge success thanks to Bobby who tells his fellow raftmates in the email community, “Keep Rowing.”

By |2019-09-20T15:01:34-04:00April 1st, 2012|Fundraising, News|
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The Life Raft Group
155 US Highway 46, Suite 202
Wayne, NJ 07470 USA

Phone 973-837-9092
Contact us by email

The Life Raft Group is a 501 (c)(3) non-profit organization (tax id: 82-0547746) providing support through information, education, and innovative research to patients with a rare cancer called GIST (Gastrointestinal Stromal Tumor). View our 990 Form here

The information provided on the LRG site is designed to support, not to replace, the relationship that exists between a patient/site visitor and his/her physician. Read our Privacy Policy

 

Silver GuideStar - Seal of Transparency

The LRG website is dedicated in perpetuity to the memory of Mary S. Golnik.

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