LRG Supports New Jersey Legislation to Limit Patient Cost Sharing

Although GIST is among the few rare diseases that has oral chemotherapy drug treatment options available to its patients, the cost of affording these life saving medications can sometimes impose deep financial hardship depending [...]

By |2018-10-30T09:55:47-04:00February 12th, 2016|Advocacy, News|

GIST Collaborative Tissue Bank: A researcher’s perspective

The Life Raft Group GIST Collaborative Tissue Bank consists of a collection of tumor specimens from a large number of patients, stored at Stanford University. The advantages of having a tissue bank for a [...]

By |2020-02-05T08:36:22-05:00February 10th, 2016|News, Newsletter, Research, Tissue Bank|

Generic Imatinib Approved in the US for CML: What does it mean for GIST patients?

On February 1, 2016, the commercial launch of the generic version of imatinib mesylate (Gleevec), for CML (Chronic Myeloid Leukemia) was approved by the FDA after the Novartis patent expiration and will become available for the first time in the United States through Sun Pharmaceuticals.

By |2019-09-23T11:28:24-04:00February 10th, 2016|Drug Treatment, Generics, Gleevec, News, Newsletter|

How To S.T.O.P. Caregiver Burnout

According to a 2015 report by the  National Alliance of Caregivers, approximately 43.5 million adults in the United States provided unpaid care to an adult or child in 2015. Caregivers come from diverse demographic [...]

By |2019-10-31T13:38:50-04:00February 10th, 2016|Caregiver Support, Coping with GIST, News, Newsletter|

All We Need is Love: A collection of messages and images from the heart

Dear LRG Community, Thanks to our: Caregivers, the unsung heroes who care for and give to our patients every day Research team, who tirelessly reach for our mission to find a cure Donors, who [...]

By |2019-04-10T15:09:14-04:00February 10th, 2016|LRG Gallery, News, Newsletter, Photos|

Liquid Biopsy Holds Promise for Precision Medicine

In a recent release from the Translational Genomics Research Institute (TGen), it was reported that researchers have discovered that by analyzing circulating tumor DNA (ctDNA) through liquid biopsy that a patient's cancer can be tracked [...]

By |2018-10-30T11:23:07-04:00December 29th, 2015|News, Research|

Partnering for Cures Seventh Annual Meeting Held in NYC

The 7th Annual Partnering for Cures meeting hosted by FasterCures was held Nov. 1-3 in NYC with more than 750 movers and shakers from patient groups, pharma, academia, government and industry. Some notable participants included: [...]

By |2018-11-01T10:26:44-04:00December 16th, 2015|Advocacy, News, Newsletter|
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