Representatives from ten Latin American countries gathered on May 17 in Miami, Florida, for the sixth annual meeting of Alianza GIST to discuss issues related to advocacy work in their region, last year’s accomplishments [...]
International support for the GIST Patient Community continues to grow. In this article, Amy Bruno-Lindner reports on GIST Support Austria. Since the summer of 2013, GIST patients in Austria have had someone to turn [...]
The Water of Life fundraising event inspired and hosted by Dr. Matt Lurin on Wednesday, May 6th was a huge success. Held at New York City’s Battery Gardens, which overlooks the Statue of Liberty, [...]
Marilyn Lee Hoch of Huron, Ohio passed away Saturday, May 16, 2015 in Stein Hospice Services, Sandusky. She was born November 22, 1932, in Marion, Ohio, the daughter of the late Lucille Thompson. Marilyn [...]
Hi friends, It's time to begin the second leg of this super trip. So with a heavy heart and a heavier suitcase we bid goodbye to OVAC Lobby Day and Washington D.C. That's right- we! [...]
In an online article, Peter Pitts, a former FDA associate commissioner, discussed the topic of off-label product claims by pharmaceutical companies. Off-label use in this case refers to using a medication for an intention [...]
Above Left to Right: Piga Fernandez, Health Minister Carmen Castillo Taucher, President Michelle Bachelet We reported previously on the advocacy work being in Chile to benefit patients who need high cost treatments for seriously ill [...]
Hi friends,The day has come. Our GIST Advocacy Avengers (it's a working title) have been prepped, scheduled and prepped some more in order to take on their string of meetings with policymakers on Capitol Hill. [...]
Live From Washington- Training for the Hill By Mildred Menos Hi friends (see how close we've gotten already?), Your trusty reporter Milly here, reporting live from Capitol Hill. Oh, wait, not yet, technically right [...]
This year, the Life Raft Group joined the Clinical Trials Transformation Initiative (CTTI) to help make clinical trials more efficient and productive and to help accelerate new treatments. CTTI is a consortium that brings [...]
