Marlene Nei – Volunteer, Advocate, and Caregiver
Marlene has been a member of the Life Raft Group since 2011. Marlene has a long history of volunteerism for which she credits her mother who modeled helping anyone and everyone.
Hope & Obstacles Along a GIST Journey
Many GIST patients around the world struggle with getting the treatment they need to survive and thrive. Arun Krishnan’s story illustrates how collaboration between patient groups and doctors across the globe can affect patient survival.
Blueprint Medicines Announces Top-line Results from Phase 3 VOYAGER Trial
Blueprint Medicines Announces Top-line Results from Phase 3 VOYAGER Trial of Avapritinib versus Regorafenib in Patients with Advanced Gastrointestinal Stromal Tumor in patients with locally advanced unresectable or metastatic gastrointestinal stromal tumor (GIST).
GISTEntertainment Virtual Events
The LRG is offering virtual opportunities for you to connect with others and have fun while supporting our goal of raising funds for our GIST Community!
Patient of the Month for April: Linda McFarland
Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Linda McFarland shares her story.
Immunocompromised or Immunosuppressed?
During this health epidemic, wondering about being immunocompromised is a valid concern for GIST patients whether NED or on treatment and best practices are outlined in this post as quoted by experts in cancer patient treatment.
Grief in Times of Crisis
You probably are very aware of the anxiety you are feeling since the onset of the COVID-19 pandemic. What you may not be aware of is the other emotion that has been weighing heavily on most of us these days: grief.
Dr. Jerome Adams Shares How to Create a Face Covering
Our Surgeon General, Dr. Jerome Adams, shares ways to create your own face covering in a few easy steps.
LRG Featured in the MyPART Minute
The LRG was featured in the MyPART Minute April edition, in the Advocacy Spotlight section, which detailed our mission, core values, and the story of our collaboration with the National Institutes of Health to create the annual NIH Pediatric and Wildtype GIST Clinic.
Conversations with the Life Raft Group LIVE
Conversations with the Life Raft Group will debuted 4/2/2020 at 1 pm. Our first featured guest was Norman J. Scherzer, the Executive Director of the Life Raft Group. With his background at the CDC as Assistant Commissioner of Health for NYC, Norman is an excellent resource for discussing strategies for coping with COVID-19.