This is a collection of posts by LRG members who have faced the challenges of SDH-deficient GIST and other non KIT/PDGFRA subtypes. If you are interested in sharing your experience for the benefit of others, please email Mary Garland, Director of Communications at mgarland@liferaftgroup.org.
Member Story – April Calloway Stephens
April was always comfortable with her decision to start a family but she understood the gravity of her actions and what that might mean to other patients. “I think stopping Gleevec to start a family is something that each patient would have to consider closely with their doctor. I was fortunate enough to be “No Evidence of Disease” since my surgery in 2000, so my family, doctor and I were comfortable stopping it.