I had the pleasure of attending the 15th Pediatric and Wildtype Clinic along with Becky Owens from GIST Support International as patient advocates. The Clinic was held at the National Institute of Health in [...]
The 15th Pediatric and Wildtype GIST Clinic was recently held at the National Institute of Health in Bethesda, Maryland on July 5 - 7, 2017. The Clinic is a collaborative effort between clinicians and [...]
Featured in photo: Sara Rothschild,(LRG), Erin MacBean (LRG), Phyllis Gay (GSI) and Becky Besenhaver (GSI) By Rebecca Bensenhaver, GIST Support International Representative The 14th Pediatric and Wildtype GIST Clinic was held at the National Institute of [...]
The Life Raft Group is super excited for our Life Fest Celebration on July 15-17 at the Torrance Marriott in beautiful Redondo Beach California. Life Fest is the LRG's biennial convention that brings together GIST [...]
Hi friends, It's time to begin the second leg of this super trip. So with a heavy heart and a heavier suitcase we bid goodbye to OVAC Lobby Day and Washington D.C. That's right- we! I [...]
The 12th Pediatric and Wildtype GIST Clinic was held May 21 to 23, 2014 at the National Institutes of Health in Bethesda, Maryland. Coordinated by Dr. Sosipatros Boikos, and based out of the NIH Pediatric Oncology Department under the direction of Dr. Lee Helman, the Clinic is collaboration between clinicians and researchers to collect data, investigate and develop treatment for GIST patients who do not have either c-KIT or PDGFRA mutation.